Towards the Emancipation of Patients : Patients' Experiences and the Patient Movement

This highly original book examines, for the first time, how the patient movement, which works to improve the quality of healthcare, can actually be considered an emancipation movement when led by its radical elements. TOWARDS THE EMANCIPATION OF PATIENTS......Page 2 Contents......Page 6 List of figures and tables......Page 7 Glossary and abbreviations......Page 8 Preface......Page 11 Preliminary thoughts......Page 14 Four lines of evidence......Page 16 The plan of the book......Page 22 Emancipation movements......Page 26 Alford’s theory......Page 29 The consequences of repression......Page 36 Domination......Page 39 Coercion, repression and oppression......Page 40 Conclusion......Page 45 The patient movement......Page 46 The birth of the patient movement......Page 47 Patient groups, the building blocks of the patient movement......Page 48 Radical and conservative patient groups......Page 50 The actions of radical and conservative patient groups and individual activists......Page 51 My hypothesis that the patient movement is an emancipation movement......Page 53 An unrecognised emancipation movement?......Page 54 Steps towards recognition?......Page 56 Comment......Page 59 The conditions necessary for radicalisation......Page 60 AIMS Association for Improvements in the Maternity Services......Page 61 NAWCH National Association for the Welfare of Children in Hospital......Page 62 BSSG Bristol Survey Support Group......Page 64 RAGE Radiotherapy Action Group Exposure......Page 65 IDDT Insulin Dependent Diabetic Trust......Page 66 APRIL Adverse Psychiatric Reactions Information Link......Page 68 Independent activists......Page 70 The three conditions revisited......Page 71 Comparing radicalisation with the birth of 'oppositional consciousness' in recognised emancipation movements......Page 78 Conclusion......Page 80 Patient groups’ knowledge......Page 82 Activists’ new knowledge......Page 83 The sources of new knowledge......Page 87 Two examples of the sources and uses of new knowledge......Page 93 Conclusion......Page 102 Standards......Page 104 Ideas and insights......Page 105 Principles......Page 106 Patient autonomy......Page 108 Autonomy and the core principles......Page 110 Patient autonomy and medical ethics......Page 111 Identifying new issues......Page 113 Activists’ sense of direction and sequences of standards......Page 114 Principles together support autonomy......Page 117 Principles reviewed in the next chapter......Page 118 Other principles......Page 119 Coda......Page 120 Respect......Page 122 Equity......Page 124 Access......Page 125 Information......Page 126 Safety......Page 131 Choice......Page 135 Shared decision making......Page 138 Support......Page 141 Representation......Page 142 Redress......Page 145 Convictions and schisms......Page 148 Background: lay people in health service governance bodies......Page 149 Research......Page 151 Conflict and stress in CHCs......Page 158 Vignette of two CHCs......Page 159 Relevance to today: radical and conservative patient groups and patient activists......Page 161 Today’s controversies and conflicts......Page 162 Conclusions......Page 166 Conservative and radical doctors......Page 170 Allies: radical doctors......Page 171 The radicalisation of doctors......Page 173 Relations with radical patient groups......Page 176 Antagonists: conservative doctors......Page 177 Patient liaison groups at the medical royal colleges......Page 182 Points arising from the three projects......Page 189 Purposes and interests......Page 192 Conclusion......Page 193 Tracing the origins of new standards......Page 194 The spread of radical patient activism’s principles......Page 197 The spread of radical standards......Page 203 Assessing progress: radical patient activists’ influence on health professionals......Page 205 Assessing progress: activists’ effects on standards of care......Page 207 Conclusions......Page 211 Justice......Page 212 Equality......Page 216 Recognising the patient movement as an emancipation movement......Page 218 Patients as a social group: making sense of the patient side of healthcare......Page 219 Making healthcare worthy of the aspirations of those who give it......Page 221 Improving the quality of healthcare......Page 222 Last words......Page 227 APPENDIX: The principal component analysis......Page 228 References......Page 232 Index......Page 260

Despite a policy focus on involving patients in health care and increasing patient autonomy, much covert coercion of patients takes place in everyday healthcare. This book, by a leading patient activist, examines for the first time how the patient movement, which works to improve the quality of healthcare, can actually be considered an emancipation movement when led by its radical elements. In this highly original book the author argues that radical patient groups and individual activists who repeatedly challenge or oppose some standards in healthcare, can be seen as working in the direction of freeing patients from coercion and from its associated injustice and inequality. Combining new academic theory with rich empirical evidence, the book explains how looking at healthcare from an emancipatory perspective could improve its quality as patients experience it. It will appeal to health professionals, managers, patient activists, policy makers and others concerned with the quality of healthcare.

Machine Generated Contents Note: One. Introduction -- Two. Setting The Theoretical Scene -- Three. Patient Movement -- Four. Radicalisation -- Five. Radical Activists' New Knowledge -- Six. Values, Principles And Standards -- Seven. Ten Principles -- Eight. Conflict And Schism -- Nine. Allies And Antagonists -- Ten. Achievements And Failures -- Eleven. What Next?. Charlotte Williamson. Includes Bibliographical References (p. 219-246) And Index. The patient movement works to improve the quality of healthcare. Some of the work entails trying to get standards of care that put patients at institutionalised disadvantage replaced by standards that free (emancipate) patients from that disadvantage. Combining new academic theory with rich empirical evidence, the author explains how looking at healthcare from an emancipatory perspective could improve its quality as patients experience it The patient movement works to improve the quality of healthcare. This work explains how looking at healthcare from an emancipatory perspective could improve its quality as patients experience it. It is suitable for health professionals, managers, patient activists, policy makers and others concerned with the quality of healthcare