The Paradox of Hope : Journeys Through a Clinical Borderland

Grounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances. Grounded In Intimate Moments Of Family Life In And Out Of Hospitals, The Paradox Of Hope Focuses On A Group Of African American Families In A Multicultural Urban Environment, Many Of Them Poor And All Of Them With Children Who Have Serious Chronic Medical Conditions. Depicting The Urban Hospital As A Border Zone Where Race, Class, And Chronic Disease Intersect, Cheryl Mattingly Describes Communities Of Care That Span Both Clinic And Family To Show How And Why Hope Is Created As An Everyday Reality Amid Trying Circumstances. Her Highly Readable, Theoretically Innovative Study Proposes A Narrative Phenomenology Of Practice As It Explores These Rich Case Stories. The Lobby -- Narrative Matters -- Border Trouble -- Widening The Gap : The Creation Of A Conflict Drama -- Plotting Hope -- Daydreaming : Captain Hook Gets Speech Therapy -- Fleeting Hope -- Narrative Phenomenology And The Practice Of Hope. Cheryl Mattingly. Includes Bibliographical References (p. 247-262) And Index. Front Cover......Page 1 Half-Title......Page 3 Title......Page 5 Copyright......Page 6 Dedication......Page 7 Contents......Page 9 Prologue......Page 11 Acknowledgments......Page 13 1. The Lobby......Page 19 2. Narrative Matters......Page 55 3. Border Trouble......Page 95 4. Widening the Gap: The Creation of a Conflict Drama......Page 133 5. Plotting Hope......Page 159 6. Daydreaming: Captain Hook Gets Speech Therapy......Page 193 7. Fleeting Hope......Page 218 8. Narrative Phenomenology and the Practice of Hope......Page 234 1. The lobby......Page 253 2. Narrative matters......Page 255 3. Border trouble......Page 261 6. Daydreaming......Page 262 8. Narrative phenomenology and the pratice of hope......Page 263 References......Page 265 Index......Page 281 Colophon......Page 287 Back Cover......Page 288