The Official Patient's Sourcebook on Miller Fisher Syndrome: A Revised and Updated Directory for the Internet Age

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to miller fisher syndrome (also ), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on miller fisher syndrome. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. Introduction 9 Overview 9 Organization 11 Scope 11 Moving Forward 12 PART I: THE ESSENTIALS 15 Chapter 1. The Essentials on Miller Fisher Syndrome: Guidelines 17 Overview 17 What Is Miller Fisher Syndrome? 18 Is There Any Treatment? 19 What Is the Prognosis? 19 What Research Is Being Done? 19 For More Information 19 More Guideline Sources 19 Vocabulary Builder 22 Chapter 2. Seeking Guidance 25 Overview 25 Associations and Miller Fisher Syndrome 25 Finding More Associations 27 Finding Doctors 28 Finding a Neurologist 29 Selecting Your Doctor 30 Working with Your Doctor 31 Broader Health-Related Resources 32 Vocabulary Builder 32 PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL 35 Chapter 3. Studies on Miller Fisher Syndrome 37 Overview 37 Federally-Funded Research on Miller Fisher Syndrome 37 E-Journals: PubMed Central 38 The National Library of Medicine: PubMed 39 Vocabulary Builder 39 PART III. APPENDICES 43 Appendix A. Researching Your Medications 45 Overview 45 Your Medications: The Basics 46 Learning More about Your Medications 48 Commercial Databases 48 Contraindications and Interactions (Hidden Dangers) 49 A Final Warning 50 General References 51 Appendix B. Researching Nutrition 53 Overview 53 Food and Nutrition: General Principles 54 Finding Studies on Miller Fisher Syndrome 58 Federal Resources on Nutrition 59 Additional Web Resources 60 Vocabulary Builder 60 Appendix C. Finding Medical Libraries 61 Overview 61 Preparation 61 Finding a Local Medical Library 62 Medical Libraries Open to the Public 62 Appendix D. Your Rights and Insurance 69 Overview 69 Your Rights as a Patient 69 Patient Responsibilities 73 Choosing an Insurance Plan 74 Medicare and Medicaid 76 NORD's Medication Assistance Programs 79 Additional Resources 80 Vocabulary Builder 81 ONLINE GLOSSARIES 83 84 Online Dictionary Directories 84 MILLER FISHER SYNDROME GLOSSARY 85 90 General Dictionaries and Glossaries 90 INDEX 92 Overview......Page 9 Scope......Page 11 Moving Forward......Page 12 PART I: THE ESSENTIALS......Page 15 Overview......Page 17 What Is Miller Fisher Syndrome?......Page 18 More Guideline Sources......Page 19 Vocabulary Builder......Page 22 Associations and Miller Fisher Syndrome......Page 25 Finding More Associations......Page 27 Finding Doctors......Page 28 Finding a Neurologist......Page 29 Selecting Your Doctor......Page 30 Working with Your Doctor......Page 31 Vocabulary Builder......Page 32 PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 35 Federally-Funded Research on Miller Fisher Syndrome......Page 37 E-Journals: PubMed Central......Page 38 Vocabulary Builder......Page 39 PART III. APPENDICES......Page 43 Overview......Page 45 Your Medications: The Basics......Page 46 Commercial Databases......Page 48 Contraindications and Interactions (Hidden Dangers)......Page 49 A Final Warning......Page 50 General References......Page 51 Overview......Page 53 Food and Nutrition: General Principles......Page 54 Finding Studies on Miller Fisher Syndrome......Page 58 Federal Resources on Nutrition......Page 59 Vocabulary Builder......Page 60 Preparation......Page 61 Medical Libraries Open to the Public......Page 62 Your Rights as a Patient......Page 69 Patient Responsibilities......Page 73 Choosing an Insurance Plan......Page 74 Medicare and Medicaid......Page 76 NORD's Medication Assistance Programs......Page 79 Additional Resources......Page 80 Vocabulary Builder......Page 81 ONLINE GLOSSARIES......Page 83 Online Dictionary Directories......Page 84 MILLER FISHER SYNDROME GLOSSARY......Page 85 General Dictionaries and Glossaries......Page 90 INDEX......Page 92