The Official Parent's Sourcebook on Septo-Optic Dysplasia: A Revised and Updated Directory for the Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to septo-optic dysplasia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on septo-optic dysplasia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Septo-Optic Dysplasia: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Septo-Optic Dysplasia; Chapter 4. Books on Septo-Optic Dysplasia; Chapter 5. Multimedia on Septo-Optic Dysplasia; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; SEPTO-OPTIC DYSPLASIA GLOSSARY; INDEX. Related topics include: De Morsier Syndrome. Overview......Page 10 Scope......Page 12 Moving Forward......Page 13 PART I: THE ESSENTIALS......Page 16 Overview......Page 18 What Is Septo-Optic Dysplasia?......Page 19 For More Information......Page 20 More Guideline Sources......Page 22 Vocabulary Builder......Page 24 Overview......Page 26 Finding Doctors......Page 28 Finding a Neurologist......Page 29 Working with Your Child's Doctor......Page 30 Broader Health-Related Resources......Page 31 PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 32 Federally-Funded Research on Septo-Optic Dysplasia......Page 34 The National Library of Medicine: PubMed......Page 41 Vocabulary Builder......Page 42 The National Library of Medicine Book Index......Page 48 General Home References......Page 49 Vocabulary Builder......Page 50 Bibliography: Multimedia on Septo-Optic Dysplasia......Page 52 Vocabulary Builder......Page 53 PART III. APPENDICES......Page 56 Overview......Page 58 Your Child's Medications: The Basics......Page 59 Learning More about Your Child's Medications......Page 60 Commercial Databases......Page 61 Contraindications and Interactions (Hidden Dangers)......Page 62 A Final Warning......Page 63 General References......Page 64 Overview......Page 66 Food and Nutrition: General Principles......Page 67 Finding Studies on Septo-Optic Dysplasia......Page 71 Federal Resources on Nutrition......Page 72 Additional Web Resources......Page 73 Preparation......Page 74 Medical Libraries Open to the Public......Page 75 Your Child's Rights as a Patient......Page 82 Parent Responsibilities......Page 86 Choosing an Insurance Plan......Page 87 NORD's Medication Assistance Programs......Page 89 Additional Resources......Page 90 Vocabulary Builder......Page 91 ONLINE GLOSSARIES......Page 92 Online Dictionary Directories......Page 93 SEPTO-OPTIC DYSPLASIA GLOSSARY......Page 94 General Dictionaries and Glossaries......Page 102 INDEX......Page 104 This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to septo-optic dysplasia (also De Morsier Syndrome), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Sele