The Official Parent's Sourcebook on Reye's Syndrome: A Revised and Updated Directory for the Internet Age

This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to reye's syndrome (also Fatty Liver with Encephalopathy; Reye's Syndrome; White liver disease), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on reye's syndrome. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. Overview......Page 11 Scope......Page 13 Moving Forward......Page 14 PART I: THE ESSENTIALS......Page 17 Overview......Page 19 What Is Reye's Syndrome?......Page 20 What Is the Prognosis?......Page 21 More Guideline Sources......Page 22 Vocabulary Builder......Page 25 Associations and Reye's Syndrome......Page 27 Finding More Associations......Page 30 Finding Doctors......Page 31 Finding a Neurologist......Page 32 Working with Your Child's Doctor......Page 33 Vocabulary Builder......Page 34 PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 37 The Combined Health Information Database......Page 39 Federally-Funded Research on Reye's Syndrome......Page 40 The National Library of Medicine: PubMed......Page 43 Vocabulary Builder......Page 44 The National Library of Medicine Book Index......Page 47 General Home References......Page 49 Vocabulary Builder......Page 51 Bibliography: Multimedia on Reye's Syndrome......Page 53 Vocabulary Builder......Page 54 NIH Guidelines......Page 55 NIH Databases......Page 56 Other Commercial Databases......Page 59 The Genome Project and Reye's Syndrome......Page 60 Specialized References......Page 65 Vocabulary Builder......Page 66 Dissertations on Reye's Syndrome......Page 69 Vocabulary Builder......Page 70 PART III. APPENDICES......Page 71 Overview......Page 73 Your Child's Medications: The Basics......Page 74 Learning More about Your Child's Medications......Page 75 Commercial Databases......Page 76 Contraindications and Interactions (Hidden Dangers)......Page 78 A Final Warning......Page 79 Vocabulary Builder......Page 80 Overview......Page 83 What Are the Domains of Alternative Medicine?......Page 84 Finding CAM References on Reye's Syndrome......Page 88 General References......Page 90 Overview......Page 93 Food and Nutrition: General Principles......Page 94 Finding Studies on Reye's Syndrome......Page 98 Federal Resources on Nutrition......Page 99 Additional Web Resources......Page 100 Vocabulary Builder......Page 103 Preparation......Page 107 Medical Libraries Open to the Public......Page 108 Your Child's Rights as a Patient......Page 115 Parent Responsibilities......Page 119 Choosing an Insurance Plan......Page 120 NORD's Medication Assistance Programs......Page 122 Additional Resources......Page 123 Vocabulary Builder......Page 124 ONLINE GLOSSARIES......Page 125 Online Dictionary Directories......Page 130 REYE'S SYNDROME GLOSSARY......Page 131 General Dictionaries and Glossaries......Page 137 INDEX......Page 139