The Moral, Social, and Commercial Imperatives of Genetic Testing and Screening: The Australian Case (International Library of Ethics, Law, and the New Medicine Book 30)

This is a dynamic book that successfully combines global and local thinking with regard to an emerging technology that will contribute to the expansion of proteomics and pharmacogenomics, the science of tailored healthcare and treatments. Genetic testing and screening will change the way people understand health, diagnostic knowledge, illness but also crime, databases and private information, paternity, and self-knowledge. In addition to giving individuals the opportunity to think differently about their well-being, it installs a new taxonomy in terms of illness, because its probabilistic effects will introduce a new narrative in the health discourse of 21 st century society. While in the past people could be classified as being healthy or sick, now, through genetic testing and screening, adults can be classified as being healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. The effects of this taxonomy do not remain confined to the individual who is tested but extends to an entire family, as genetic knowledge is family knowledge. But the technology of genetic testing and screening installs a second dramatic register in the prenatal phase when cells and embryos are tested and subsequently altered in order to hit targets of perfection. However, this technology can also be seen as a strategy for the acquisition of new knowledge about oneself, as it instigates a different attitude towards ourselves in a scenario in which the notion of life as a singular noun is seriously questioned by cultural practices that make it necessary to speak of forms of life. The complexity of the Self resulting from this epistemological shift evoke the ancient Greco-roman practices of the care of the self leading to self-knowledge. Genetic testing and screening could therefore be understood as a form of self-quest, and attempt to discover what we are beyond our wishes and desires - beyond what we would like to be. Front Matter....Pages i-xv Front Matter....Pages 1-1 From Destiny to Freedom? On Human Nature and Liberal Eugenics in the Age of Genetic Manipulation....Pages 3-24 Diagnostic Knowledge in the Genetic Economy and Commerce....Pages 25-52 Front Matter....Pages 53-53 Body Talk: Genetic Screening as a Device of Crime Regulation....Pages 55-70 Genetic Testing and Human Genetic Databases....Pages 71-93 The Imperative of the "New Genetics": Challenges for Ethics, Law, and Social Policy....Pages 95-124 Insurance and Genetics: Regulating a Private Market in the Public Interest....Pages 125-163 The Social Imperative for Community Genetic Screening: An Australian Perspective....Pages 165-184 Genetically Transformed Healthcare: Healthy Children and Parents....Pages 185-199 The Australian Law Reform Inquiry into Genetic Commission Testing - A Worker's Perspective....Pages 201-210 Genetic Information and the Australian Labour Movement....Pages 211-220 Protecting the Vulnerable: Genetic Testing and Screening for Parentage, Immigration, and Aboriginality....Pages 221-236 Essentially Whose? Genetic Testing and the Ownership of Genetic Information....Pages 237-245 Front Matter....Pages 248-248 Self-Knowledge and Self-Care in the Age of Genetic Manipulation....Pages 249-255 Front Matter....Pages 258-258 Conclusion....Pages 257-261 Back Matter....Pages 265-270 In the past people were classified as being healthy or sick. With genetic testing and screening, adults might be healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. Genetic testing and screening hits another dramatic note when cells and embryos are tested and subsequently altered to hit targets of perfection. This insightful book combines theory and social practice, drawing on a range of disciplines and presenting contrasting viewpoints.