Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability (Cambridge Studies in Philosophy and Public Policy)

This study brings together two important literatures together in the one volume. One concerns the role of quality assessments in social policy, especially health policy. The second concerns ethical and social issues raised by prenatal testing for disability. Hitherto, these two literatures have had little contact with each other: few scholars have written about both, or have compared the two domains in a systematic way, while people with disabilities and disability scholars are underrepresented in recent discussion on health policy and quality of assessment. This book turns the perspectives of disability scholars on issues that have largely been the province of health methodology, policy and philosophy, while angling philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and healthcare economics. This Volume Brings Together Two Important Literatures For The First Time. One Concerns The Role Of Quality-of-life Assessments In Social Policy, And Especially In Health Policy. The Second Concerns Ethical And Social Issues Raised By Prenatal Testing For Disability; A Theme Of This Literature Has Been The Role Played By Controversial Assumptions About The Quality Of Life Of People With Disabilities. Hitherto, These Two Literatures Have Had Little Contact With Each Other. Few Scholars Have Written About Both Or Have Compared The Two Domains In A Systematic Way, And People With Disabilities And Disability Scholars Are Underrepresented In Recent Discussions About Health Policy And Quality-of-life Assessment. This Book Brings To Bear The Perspectives Of Disability Scholars On Issues That Have Largely Been The Province Of Health Methodology, Policy, And Philosophy, While Focusing Philosophical Policy Analysis On Problems That Have Largely Been The Province Of Disability Scholarship. This Volume Will Be Sought After By Bioethicists, Philosophers, And Specialists In Disability Studies And Health Care Economics.--jacket. Assessing Quality Of Life / Robert Wachbroit -- Predicting Genetic Disability While Commodifying Health / Anita Silvers -- Preventing Genetically Transmitted Disabilities While Respecting Persons With Disabilities / Dan W. Brock -- Nord -- Preventing The Existence Of People With Disabilities / Jeff Mcmahan -- Where Is The Sin In Synecdoche / Adrienne Asch And David Wasserman -- Social Context Of Individual Choice / Tom Shakespeare -- Disability And Health Systems Assessment / Jerome Bickenbach. Edited By David Wasserman, Jerome Bickenbach, Robert Wachbroit. Includes Bibliographical References And Index. This innovative volume brings together two important literatures for the first time. One concerns the role of quality-of-life assessments in social policy, and especially in health policy. The second concerns ethical and social issues raised by prenatal testing for disability; a theme of this literature has been the role played by controversial assumptions about the quality of life of people with disabilities.Hitherto, these two literatures have had little contact with each other. Few scholars have written about both or have compared the two domains in a systematic way, and people with disabilities and disability scholars are underrepresented in recent discussions about health policy and quality-of-life assessment. This book brings to bear the perspectives of disability scholars on issues that have largely been the province of health methodology, policy, and philosophy, while focusing philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and health care economics. The role of quality assessments in social policy, especially health policy, and ethical and social issues raised by prenatal testing for disability are discussed in this analysis. A theme of the literature has been the role played by controversial assumptions about the quality of life of people with disabilities. This book turns the perspectives of disability scholars to issues that have largely been the province of health methodology, policy and philosophy, while re-directing philosophical policy analysis to problems that have largely been the province of disability scholarship.