Post-polio syndrome : a guide for polio survivors and their families

The effects of polio that occur decades after the disease has run its course—weakness, fatigue, pain, intolerance to cold, difficulty with breathing and swallowing—are often more devastating than the original disease. This book on the diagnosis and management of polio-related health problems is an essential resource for polio survivors and their families and health care providers. Dr. Julie K. Silver, who has both personal and professional experience with post-polio syndrome, begins the book by defining and describing PPS and providing a historical overview of its diagnosis and treatment. Chapters that follow discuss finding good medical care, dealing with symptoms, maintaining proper nutrition and weight, preventing osteoporosis and falls, and sustaining mobility. Dr. Silver reviews the latest in braces, shoes, assistive devices, and wheelchairs and scooters. She also explores issues involving managing pain, surgery, complementary and alternative medicine, safe and comfortable living environments, insurance and disability, and sex and intimacy. Contents 7 Foreword 9 Preface 13 1. Polio—A Look Back 19 2. Post-Polio Syndrome 30 3. Nonparalytic Polio and Post-Polio Syndrome 39 4. Finding Expert Medical Care 45 5. The EMG Controversy 56 6. Prevailing over Pain 62 7. Preserving and Protecting Your Arms 71 8. Sustaining Strength 80 9. Fighting Fatigue 86 10. Controlling Cold Intolerance 98 11. Respiratory Problems 101 12. Swallowing Issues 109 13. Exercise Essentials 121 14. Energy Conservation and Pacing 140 15. Nutrition and Weight 158 16. Preventing Falls and Further Disability 162 17. Keeping Bones Healthy and Strong 177 18. Mobility 188 19. Bracing, Shoes, and Assistive Devices 195 20. Wheelchairs and Scooters 204 21. Surgical Considerations 216 22. Complementary and Alternative Medicine 227 23. Designing a Safe and Comfortable Living Environment 234 24. Insurance and Disability Benefits 246 25. Sex and Intimacy 255 26. Coping with Polio and Post-Polio Syndrome 267 Notes 279 Index 289