Perinatal and Pediatric Bereavement in Nursing and Other Health Professions

[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. — Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement.

--Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN

From the Foreword

This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved.

Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam.

Key Features:

• Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss
• Disseminates the newest theoretical frameworks that can be used to create interventions and develop research
• Includes case studies demonstrating how theory is applicable to research and practice
• Facilitates critical thinking with different and even competing perspectives
• Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

[This] is a story of love, hope, and healing. There are 18 chapterscovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. This book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement." Betty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and its focus on the nurses and other health care providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book enhances the expertise of clinicians caring for bereaved women and their families. It includes case studies, interview excerpts, graphics, and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification (NBCHPN) exam. KEY Cover -- Title -- Copyright -- Contents -- Contributors -- Foreword -- Preface -- Share Perinatal and Pediatric Bereavement in Nursing and Other Health Professions -- Section I: Perinatal Bereavement -- Chapter 1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies -- Addressing Culture: A First Step in Bereavement Care -- Continuing Bonds: Re-Examining How Attachments Are Maintained After Death -- Posttraumatic Growth in Response to Loss -- Concepts Related to Bereavement Theories -- Conclusion -- Chapter 2: Applying Theoretical Frameworks to Research in Perinatal Bereavement -- Attachment Theory -- Psychodynamic Theory -- Interpersonal Theory -- Cognitive Stress Theory -- Feminist Theory -- Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research -- Conclusion -- Case Study -- Focus Questions -- Chapter 3: Caregiving as a Theoretical Framework in Perinatal Palliative Care -- Brief Historical Overview -- Identifying Families in Need of Services -- Layered, Progressive News Versus Sudden, Unexpected Realization -- PPC Research -- The Importance of Caregiving -- The Internal Working Model of Caregiving -- Caregiving in Bereaved Parents -- Clinical Guidelines: Caregiving in Perinatal Palliative Care -- Birth and Advance Care Planning -- Beginning the Journey With the Family -- The Role of the PPC Team -- Support During the Pregnancy -- Documentation -- Conclusion -- Case Study -- Focus Questions -- Resources -- Chapter 4: When an Expected Baby Dies: Maternal-Fetal Attachment in Context of Loss -- Theoretical Roots of Attachment and Bonding -- Describing and Defining Women's Relationship to the Developing Fetus -- Narratives From Three Expectant Families With a Severe Fetal Diagnosis -- Conclusion -- Case Study -- Focus Questions My absent child : cultural and theoretical considerations of bereavement when a child dies / Patricia Moyle Wright Applying theoretical frameworks to research in perinatal bereavement / Sarah Kye Price and Dalia El-Khoury Caregiving as a theoretical framework in perinatal palliative care / Rana Limbo, Anthony Lathrop & Jane Heustis When an expected baby dies : maternal-fetal attachment in context of loss / Beth Perry Black The pushing on theory of maternal perinatal bereavement / Patricia Moyle Wright Complicated grief and perinatal loss / Patricia Moyle Wright Early pregnancy loss in adolescence / Sara Rich Wheeler & Marlene G.S. Sefton Understanding the experience of pregnancy subsequent to a perinatal loss / Denise Cöté-Arsenault & Joann O'Leary Conceptual approaches to understanding parental grief after the death of a child / Margaret Shandor Miles Theoretical perspectives on pediatric palliative care / Rose Steele & Kimberly Widger Hopes, hopefulness, and pediatric palliative care / Douglas Hill & Chris Feudtner Grieving the traumatic death of a child / Wendy Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, Kailey E. Roberts Remembering the 'forgotten bereaved' : understanding and caring for siblings of completed suicide victims / Rebecca Kabatchnick and Beth Perry Black Bereavement in young children in pediatric palliative care / Betty Davies, Camara van Breemen, Susan Poitras & Eric Stephanson Supporting grieving children / Andy McNiel & Donna L. Schuurman Moments matter : exploring the evidence of caring for grieving families and self / Rana Limbo & Kathie Kobler. Offers different and even competing perspectives on loss, grief and bereavement, which is essential given the complexities of the tragic human experience of perinatal, neonatal, and paediatric death. The Editors have selected an impressive array of contributors who have provided new theoretical approaches and explored extant concepts in new ways. This is a definitive, state-of-the-art resource for professionals who provide bereavement care to families when a baby or older child dies.Culling the most important new evidence from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice recommendations to fill a gap in the current literature