Patients, Consumers And Civil Society (advances In Medical Sociology)

Medical Sociology is the among the largest and first sub disciplines in Sociology. It is an area of ongoing work, advancing theory, method and our substantive understanding of social life. This book brings together various issues and concerns in Medical Sociology. Medical Sociology is the among the largest and first sub disciplines in Sociology. It is an area of ongoing work, advancing theory, method and our substantive understanding of social life. This series brings together the newest issues and most current concerns in Medical Sociology, in an ongoing collection of edited volumes. Each volume is edited by a medical sociologist with a particular expertise, bringing together contributions from sociologists working in different settings and nations, exploring one particular advance in Medical Sociology Cover Page......Page 1 Advances in medical sociology......Page 2 Title Page......Page 3 Copyright......Page 4 List of contributors......Page 5 Introduction......Page 7 Acknowledgments......Page 14 References......Page 15 No longer a patient: The social construction of the medical consumer......Page 16 The Breast Cancer Study......Page 21 The Infertility Study......Page 22 Becoming a medical consumer......Page 24 Public Representations of Health......Page 25 Embodied Knowledge......Page 28 The Synthesis of Lay and Professional Knowledge......Page 31 Conclusion......Page 35 References......Page 37 Direct to consumer responsibility: Medical neoliberalism in pharmaceutical advertising and drug development......Page 42 Background......Page 44 Medical neoliberalism in direct-to-consumer advertising (DTCA)......Page 47 The Empowered Consumer in DTCA Policy Discourse......Page 48 Problems with the Empowered Consumer Discourse......Page 50 Medical neoliberalism in clinical trials......Page 51 The Empowered Subject in Clinical Trials Industry Discourse......Page 52 Problems with the Empowered Subject Discourse......Page 54 Conclusion......Page 55 What Would Meaningful Empowerment Look Like?......Page 57 Notes......Page 59 References......Page 60 Making connections: Egg donation, the Internet, and the new reproductive technology marketplace......Page 65 Medicine as a ‘‘Market’’......Page 66 Blood, Organ, and Semen Donation......Page 69 The Reproductive Medicine Market......Page 70 Market Structure and Policy......Page 72 The Consumer......Page 73 The Product......Page 74 Appearance......Page 76 Donor Qualifications......Page 77 Databases and Profiles......Page 78 Cost and Payment......Page 79 Conclusion......Page 80 Notes......Page 82 References......Page 83 Selling the ideal birth: Rationalization and re-enchantment in the marketing of maternity care......Page 86 Introduction......Page 87 Medicalization, consumerism, and natural birth......Page 89 Selling birth: A thematic analysis ofTMchildbirth marketing......Page 93 Environment......Page 96 Relational Connection......Page 97 Individual Empowerment......Page 98 Tensions in the rationalization and re-enchantment of birth in the hospital......Page 99 Conclusion......Page 104 References......Page 106 Too Posh To Push? Comparative perspectives on maternal request caesarean sections in Canada, the US, the UK and Finland......Page 110 Shifting perspectives on medical and maternity consumerism......Page 112 Methods......Page 115 Defining maternal request caesarean sections......Page 116 Impetus for the rising concern with MRCS......Page 117 Maternal ‘‘Choice’’ of Caesarean Sections......Page 119 Physician-Responsive or Physician-Directed Maternal ‘‘Choice’’?......Page 121 Resisting Surgical Birth by Addressing the Issue of Fear......Page 124 Discussion......Page 126 Notes......Page 129 References......Page 130 Self-help groups challenge health care systems in the USTMand UK......Page 135 Introduction......Page 136 Conceptualizations of consumerism in health......Page 137 Characteristics of health care systems and the voluntary sectors of society......Page 140 The voluntary health sector......Page 143 Case 1: Personality disorder......Page 145 Case 2: Carers......Page 147 Case 3: People who stutter - From self-blaming ‘‘Victim’’ to critic of stuttering therapy......Page 148 Case 4: GROW - From ex-mental patient to respected member of ‘‘A caring and sharing’’ community......Page 149 Conclusions......Page 150 How Do These Findings Contribute to Consumerism Theory in Health?......Page 153 References......Page 154 From discovery to recovery and beyond: The role of voluntary health sector organizations in the lives of women with breast cancer......Page 159 Introduction......Page 160 Review of the literature......Page 162 The context: VHOs in Canada......Page 165 Voluntary Health Organizations (VHOs)......Page 166 Interviews with Breast Cancer Survivors......Page 167 Findings......Page 168 Voluntary Health Organizations (VHOs)......Page 169 Women’s Interactions with VHOs......Page 170 Discovery Stage......Page 171 Recovery Stage......Page 172 And Beyond......Page 173 Discussion......Page 174 Conclusion......Page 179 Acknowledgments......Page 181 References......Page 182 The clubhouse model: Mental health consumer-provider partnerships for recovery......Page 185 Introduction......Page 186 Deinstitutionalization, empowerment, and the clubhouse movement......Page 188 Clubhouse philosophy, principles, and methodology......Page 191 Right to a Place to Come......Page 194 Right to Meaningful Relationships......Page 195 Right to Meaningful Work......Page 196 Leadership Development......Page 197 Challenges......Page 199 Conclusion......Page 200 References......Page 202 Straight from the heart......Page 205 The Dutch Heart Association......Page 206 Awareness of Need and Donations......Page 208 Experience with Cardiovascular Diseases and Support for the Dutch Heart Association......Page 210 Making or Breaking the Link between Awareness of Need and Giving......Page 211 Measures......Page 214 Those Who Know Heart Patients are More Likely to Support the Dutch Heart Association......Page 216 Who Has Experience with Cardiovascular Diseases?......Page 217 Who Gives to the Dutch Heart Association?......Page 218 Who gives to the Dutch Heart Association Rather than to Other Health Charities?......Page 221 Discussion and conclusion......Page 223 Notes......Page 225 Acknowledgments......Page 226 References......Page 227 Speaking for stem cells: Biomedical activism and emerging forms of patienthood......Page 230 Introduction......Page 231 Theorizing collective identities and the biomedical sciences......Page 234 Stem cell activism and collective identities......Page 236 The Event: Proposition 71 and Stem Cell Activism......Page 238 Becoming a Stem Cell Activist......Page 239 Stem Cell Activism in Public......Page 241 Discussion: Emergent forms of patienthood......Page 244 Conclusion......Page 246 References......Page 247 Forging a new commons: Self-help associations in Slovenia and Croatia......Page 251 Methodology......Page 256 The historical contexts of self-help in ex-Yugoslavia......Page 258 Relations with the professional realm......Page 261 Self-help groups and the changing role of the state......Page 264 Self-help groups now: Consumers without consumerism......Page 267 Discussion: Self-help, professionalism, and the state......Page 269 Conclusion......Page 270 References......Page 272 Gendered networks and health care privatization......Page 276 Introduction......Page 277 Specifying mobilizing structures and external allies in health care movements......Page 278 Methods......Page 280 Health care privatization in El Salvador......Page 281 The Salvadoran women’s movement......Page 286 Women-based nongovernmental organizations......Page 288 Women as brokers and leaders......Page 290 Women as allies inside the state......Page 291 Summary of women’s contributions to protecting public health care......Page 294 Discussion and conclusion......Page 295 Notes......Page 297 References......Page 298 "This volume addresses three main themes: changes in relations between patients/consumers and health care professionals and institutions in the context of increased commodification and privatization of health care; the role of a growing number of patient, disease-related and health advocacy organizations in various cultural and political contexts; and theoretical and policy implications of the rise of health consumerism and health organizations. Together, they advance our knowledge by illustrating how patients and consumers, both individually and collectively, are key actors in restructuring health care systems and health policy in numerous contexts." "Patients, Consumers and Civil Society bridges a number of areas of interest to scholars and policymakers including medical sociology, women's health care, health policy, health social movements, nonprofit organizations and civil society."--Jacket