Occupational Therapy in Epidermolysis Bullosa : A Holistic Concept for Intervention From Infancy to Adult

Epidermolysis bullosa (EB) is the collective term for a heterogenous group of genetic skin disorders characterised by the formation of blisters and erosions on skin and mucous membranes. This book deals with early childhood motor and perceptual development, a particular challenge for children with extremely fragile skin. Going into functional treatment, it addresses rehabilitation of hands and feet in EB patients with fusions or contractures. The authors are occupational therapists with long-term experience in the management of EB patients. In an extraordinary holistic approach, they present a combination of paediatric and functional areas of treatment. Occupational therapy tools and interventions can help alleviate a number of accompanying complications and symptoms of EB, enhance self-care, and improve quality of life in general. Due to its practical approach, this book not only serves as a unique guide for doctors and health care professionals but is also comprehensible and useful for patients. Front Matter....Pages i-xiii Epidermolysis Bullosa (EB) — The Condition....Pages 1-10 Motor Development in Early Childhood....Pages 11-26 Treatment of the Tactile, Vestibular and Proprioceptive Perception....Pages 27-39 Development of Hand Functions....Pages 41-47 Graphomotor Skills....Pages 49-57 Independence in Everyday Life and Provision of Assistive Devices....Pages 59-93 Client-Directed Therapy Using the COSA....Pages 95-102 Rehabilitation of the Hand....Pages 103-149 Rehabilitation of the Foot....Pages 151-178 Conclusion....Pages 179-182 Back Matter....Pages 183-190 Epidermolysis Bullosa (eb) : The Condition -- Motor Develoment In Early Childhood -- Treatment Of The Tactile, Vestibular And Proprioceptive Perception -- Development Of Hand Functions -- Graphomotor Skills -- Independence In Everyday Life And Provision Of Assisitive Devices -- Client-directed Therapy Using The Cosa -- Rehabilitation Of The Hand -- Rehabilitation Of The Foot. Hedwig Weiβ, Florian Prinz. Includes Bibliographical References (p. 184-185) And Index.