Nursing Care of Children and Young People with Chronic Illness

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. __Nursing Care of Children and Young People with Chronic Illness__ explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. __Nursing Care of Children and Young People with Chronic Illness__ is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. * The first nursing-specific text related to the care of children & young people with chronic illness * Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice * Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home * Written in the context of the NSF for Children Content: Chapter 1 The Definition and Aetiology of Chronic Illness (pages 1–28): Fay Valentine and Suzanne HazellChapter 2 Context of Care and Service Delivery (pages 29–54): Fay Valentine and Peter McneeChapter 3 Impact Upon the Child and Family (pages 55–83): Lesley LowesChapter 4 A Holistic Approach to Meeting Physical, Social and Psychological Needs (pages 84–106): Beverly Hodges and Julia TodChapter 5 Empowering Children, Young People and Their Families (pages 107–130): Mandy BrimbleChapter 6 Ethical Issues (pages 131–156): Peter Mcnee and Maggie FurnessChapter 7 Continuing Care Needs (pages 157–182): Melda Price and Sian ThomasChapter 8 Acute Emergencies (pages 183–202): Peter Mcnee and Martina NathanChapter 9 Adolescence (pages 203–233): Sian Bill and Yvonne KnightChapter 10 Transitional Care (pages 234–255): Sian Bill and Beverly Hodges Nursing Care of Children and Young People with Chronic Illness......Page 1 Contents......Page 7 Foreword......Page 13 Contributors......Page 14 Introduction......Page 17 Aim of the chapter......Page 21 Genetic knowledge......Page 22 The ethical, legal and social implications in the screening, testing and recording of genetic information......Page 23 Chromosomal abnormalities......Page 25 Chromosomal nomenclature......Page 27 Single gene (Mendelian) disorders......Page 28 Autosomal recessive inheritance......Page 29 Autosomal dominant inheritance......Page 30 X-linked recessive inheritance......Page 31 Inherited variations......Page 32 Antenatal period......Page 35 The neonatal period......Page 38 Post-neonatal period......Page 39 Adolescent period......Page 43 Conclusion......Page 44 Useful websites......Page 45 References......Page 46 Aim of the chapter......Page 49 Political influences......Page 50 Social influences......Page 52 New models of service delivery......Page 54 Modernising workforce......Page 56 Increasing patient expectations and engagement......Page 58 Locally based commissioning......Page 59 Staffing implications......Page 60 Staff education and competence......Page 61 Meeting parental needs......Page 62 Innovative practices-- new roles......Page 64 Telemedicine......Page 65 Key worker role......Page 66 Mental health issues......Page 67 Multi-agency working......Page 68 Multidisciplinary team (MDT) working......Page 69 Conclusion......Page 70 References......Page 71 Aim of the chapter......Page 75 Theories of grief, loss and change......Page 76 Type 1 diabetes......Page 81 Impact on parents......Page 82 Impact on the child/young person with chronic illness......Page 83 Impact on siblings......Page 86 Theories of stress and coping......Page 89 Coping strategies......Page 91 Normalisation......Page 93 Conclusion......Page 98 References......Page 99 Aim of the chapter......Page 104 Prevalence of eczema......Page 105 Nursing considerations......Page 106 Treatment of eczema with emollients......Page 107 Effects of the itch scratch cycle......Page 109 Family stress and coping......Page 110 Assessment and immediate intervention......Page 112 Current care management plan......Page 113 Pain assessment......Page 114 Bullying......Page 116 Spirituality......Page 119 Complementary and alternative medicine......Page 121 Health promotion......Page 122 Conclusion......Page 123 References......Page 124 Aim of the chapter......Page 127 Health promotion......Page 128 Empowerment......Page 131 Approaches to health promotion......Page 132 Parental smoking......Page 135 Obesity......Page 136 Steroids......Page 142 Restraint......Page 143 Conclusion......Page 146 References......Page 147 Aim of the chapter......Page 151 A definition of ethics......Page 152 Theory of consequentialism......Page 153 Act utilitarianism......Page 154 Rule utilitarianism......Page 155 Theory of deontology......Page 158 Ethical principles......Page 160 Principle of autonomy......Page 161 Ethical principle of beneficence......Page 164 Ethical principle of non-maleficence......Page 166 Ethical principle of justice......Page 168 A nursing ethic......Page 169 Definition of an ethical dilemma......Page 170 Ethical decision making......Page 171 A suggested model for ethics in practice/decision making......Page 172 Useful websites......Page 174 References......Page 175 Intended learning outcomes......Page 177 Complex health needs......Page 178 Transition to home care......Page 185 Continuing care policy......Page 188 Carers' assessments......Page 189 Key worker role......Page 190 Community children's nursing services......Page 192 Provision of equipment for home care......Page 193 Respite care......Page 194 Education......Page 196 Conclusion......Page 197 Support groups......Page 198 References......Page 199 Intended learning outcomes......Page 203 Acute emergencies......Page 204 Aetiology......Page 205 Environmental factors......Page 206 Pathophysiology......Page 207 Presentation......Page 208 Prognosis......Page 209 Treatment......Page 210 Administration of chemotherapy......Page 212 Central venous access devices......Page 213 Sepsis......Page 216 Family focused care......Page 217 Multidisciplinary working across different organisations......Page 218 Conclusion......Page 219 References......Page 220 Aim of the chapter......Page 223 Adolescent knowledge......Page 224 Brief overview of adolescent development......Page 225 Understanding chronic illness from a young person's perspective......Page 226 Chronic renal failure......Page 227 Communicating with young people......Page 230 Communication issues for Thomas......Page 231 Peer groups......Page 233 The impact of chronic illness on growth and development......Page 234 Inconsistencies between physical and psychological development......Page 235 Body image and self-esteem......Page 236 Compliance and non-compliance......Page 237 Young people, chronic illness and school......Page 240 Bullying......Page 242 The hospitalised adolescent......Page 243 Issues for young people in hospital......Page 244 Specialised adolescent units......Page 245 Promoting excellence......Page 247 The role of the nurse......Page 248 Useful websites......Page 249 References......Page 250 Intended learning outcomes......Page 254 Overview of cystic fibrosis......Page 255 Management......Page 257 Transitional care......Page 258 Issues regarding transition for adolescents......Page 260 Managing a chronic illness......Page 262 Support and decision making......Page 263 The role of the nurse......Page 264 Promoting the paradigm shift......Page 267 The principles of successful transitional care......Page 268 Conclusion......Page 272 References......Page 273 Index......Page 276 Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’.

Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families.

• The first nursing-specific text related to the care of children & young people with chronic illness
• Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice
• Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home
• Written in the context of the NSF for Children

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child's family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse's role in promoting children and their parents as 'expert patients'.

Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families.

• The first nursing-specific text related to the care of children & young people with chronic illness
• Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice
• Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home
• Written in the context of the NSF for Children

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. "Nursing Care of Children and Young People with Chronic Illness" is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. "Nursing Care of Children and Young People with Chronic Illness" explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child's family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse's role in promoting children and their parents as 'expert patients' The definition and aetiology of chronic illness / Fay Valentine and Suzanne Hazell Context of care and service delivery / Fay Valentine and Peter Mcnee Impact upon the child and family / Lesley Lowes A holistic approach to meeting physical, social and psychological needs / Beverly Hodges and Julia Tod Empowering children, young people and their families / Mandy Brimble Ethical issues / Peter Mcnee and Maggie Furness Continuing care needs / Melda Price and Sian Thomas Acute emergencies / Peter Mcnee and Martina Nathan Adolescence / Siân Bill and Yvonne Knight Transitional care / Siân Bill and Beverly Hodges.