Neuropalliative Care : A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. __Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease__ addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas. Front Matter ....Pages i-xiii Neuropalliative Care: An Introduction (Claire J. Creutzfeldt, Benzi M. Kluger, Robert G. Holloway)....Pages 1-8 Front Matter ....Pages 9-9 Severe Acute Brain Injury (Margaret Isaac, Claire J. Creutzfeldt)....Pages 11-23 Prolonged Coma and Early Disorders of Consciousness (Eelco F. M. Wijdicks)....Pages 25-35 Chronic Disorders of Consciousness (Sunil Kothari)....Pages 37-58 Parkinson’s Disease and Related Disorders (Janis M. Miyasaki)....Pages 59-72 Dementia (Thomas V. Caprio, Nicole Kosier)....Pages 73-87 Multiple Sclerosis (Ludo J. Vanopdenbosch, David J. Oliver)....Pages 89-99 Neuromuscular Diseases (Maisha T. Robinson, Danny Estupinan)....Pages 101-115 Malignant Brain Tumors (Akanksha Sharma, Lynne P. Taylor)....Pages 117-133 Child Neurology (Monica E. Lemmon, Renee D. Boss)....Pages 135-147 Front Matter ....Pages 149-149 Communicating Effectively (Jessica M. McFarlin, Joshua S. Barclay)....Pages 151-160 Prognostication (Brian Mac Grory, David Y. Hwang)....Pages 161-170 Improving Medical Decisions (Jorge Risco, Adam Kelly)....Pages 171-185 Addressing and Managing Requests to Hasten Death (Neal Weisbrod, Timothy E. Quill)....Pages 187-203 Withholding and Withdrawing Life-Sustaining Treatment (Ralf J. Jox)....Pages 205-218 Front Matter ....Pages 219-219 Hospice and End of Life Care in Neurologic Disease (Farrah N. Daly, Mara M. Lugassy)....Pages 221-238 Pain Assessment and Management (Christina L. Vaughan, Alan C. Carver)....Pages 239-255 Spiritual Care (S. Judith Long)....Pages 257-268 Clinician Self-Care (S. Judith Long)....Pages 269-277 Caregiver Assessment and Support (Timothy S. Sannes, Benzi M. Kluger)....Pages 279-292 Practical Implementation Strategies for Outpatient Neurology Palliative Care (Nicholas B. Galifianakis, Maya Katz, Benzi M. Kluger)....Pages 293-301 The Future of Neuropalliative Care (Claire J. Creutzfeldt, Benzi M. Kluger, Robert G. Holloway)....Pages 303-304 Back Matter ....Pages 305-312