Neuro-behavioral manifestations of Prader-Willi syndrome : a guide for clinicians and caregivers

The behavioral issues experienced by individuals with Prader-Willi Syndrome (PWS) can be both surprising and overwhelming to clinicians and caregivers. Despite the distress and dysfunction posed by them, there are very few resources available to address these neuropsychiatric problems. This invaluable guidebook helps to identify and address the spectrum of behavioral issues faced by individuals with PWS. Written by a psychiatrist with unique expertise in the management of patients with this condition, this easy-to-read book explores practical details that will aid any clinician or caregiver. Chapters offer vivid case examples and clear guidance on both the behavioral and pharmacological management of issues such as anxiety, skin-picking, ADHD, disruptive behavior (including non-suicidal self-harm), mood disorders (including depression and bipolar disorder), and psychosis. Neuro-behavioral Manifestations of Prader-Willi Syndrome serves as an essential and practical companion for any caregiver or healthcare professional providing care to people with PWS. "This book is meant for caregivers- parents, loved ones, guardians, providers, physicians, and anyone who is taking care of patients who have Prader-Willi Syndrome. You all already know that you will have to watch out for overeating and consequent weight gain. In my experience, what people are most unprepared for are the neuropsychiatric symptoms that often complicate this genetic disorder. Being a psychiatrist, I have tried my best to reflect the various evidence-based psychotherapeutic modalities which can be used to manage behavioral problems in PWS. However, my psychologist and other mental health provider colleagues may find this text sparse when it comes to discussing the value of psychotherapy. Despite the brevity of information on psychotherapy, the reader should note that evidence-based behavioral and psychological interventions can be life-changing for many individuals with PWS and their families. Readers should also note that PWS complicates an already complex human neurobiology. No text can cover all the conditions and complications that affect patients with PWS. Many non-psychiatric conditions can cause psychiatric symptoms, not to mention medications that may be given for an unrelated concern but lead to behavior change. Despite all my efforts, it is likely that many important aspects of PWS which have psychiatric implications have not been adequately addressed. To that end, in a search of the literature, we found limitations in our ability to cite some of the anecdotal findings of clinical practice. However, everything stated in this text is supported by what is generally accepted by the experts of this syndrome"-- Provided by publisher A practical guidebook providing a case-based approach to neurobehavioral problems in people with Prader-Willi Syndrome (PWS). Includes extensive treatment plans and covers a range of issues such as anxiety, skin-picking, ADHD, disruptive behavior, mood disorders, and psychosis. A must-read for clinicians and caregivers helping individuals with PWS.