Monitoring HIV Care in the United States : A Strategy for Generating National Estimates of HIV Care and Coverage

Approximately 1.2 million people in the United States live with HIV, and the number grows each year. In July 2010, the federal government released the National HIV/AIDS Strategy (NHAS), aimed at reducing HIV transmission, increasing access to care, improving health outcomes, and reducing health disparities for people living with HIV. NHAS is designed to build on Affordable Care Act provisions that will increase access to health insurance for people with HIV. A critical part of federal efforts will be to accurately monitor the scope of the HIV/AIDS epidemic and the availability and success of treatment and prevention programs. For help in structuring its plans, the White House Office of National AIDS Policy asked the IOM to prepare two reports – the first was released in March 2012 – on monitoring HIV care in the U.S. Data collected from a nationally representative sample of people with HIV can be used to help monitor the effect of the ACA on health care coverage and utilization. Monitoring will provide an enhanced means of assessing the effect of the NHAS and the ACA on care received by people with HIV – knowledge that can inform future planning and guide potential redistribution of resources to improve the efficiency and quality of care and reduce health disparities. In September 2010, The White House Office Of National Aids Policy Commissioned An Institute Of Medicine (iom) Committee To Respond To A Two-part Statement Of Task Concerning How To Monitor Care For People With Hiv. The Iom Convened A Committee Of 17 Members With Expertise In Hiv Clinical Care And Supportive Services, Epidemiology, Biostatistics, Health Policy, And Other Areas To Respond To This Task. The Committee's First Report, Monitoring Hiv Care In The United States: Indicators And Data Systems, Was Released In March 2012. The Report Identified 14 Core Indicators Of Clinical Hiv Care And Mental Health, Substance Abuse, And Supportive Services For Use By The Department Of Health And Human Services (hhs) To Monitor The Impact Of The National Hiv/aids Strategy (nhas) And The Patient Protection And Affordable Care Act (aca) On Improvements In Hiv Care And Identified Sources Of Data To Estimate The Indicators. The Report Also Addressed A Series Of Questions Related To The Collection, Analysis, And Dissemination Of Data Necessary To Estimate The Indicators. In This Second Report, Monitoring Hiv Care In The United States: A Strategy For Generating National Estimates Of Hiv Care And Coverage, The Committee Addresses How To Obtain National Estimates That Characterize The Health Care Of People With Hiv Within The Context Of The Aca, Both Before 2014 And After 2014, When Key Provisions Of The Aca Will Be Implemented. This Report Focuses On How To Monitor The Anticipated Changes In Health Care Coverage, Service Utilization, And Quality Of Care For People With Hiv Within The Context Of The Aca--publisher's Description. Introduction -- Implications Of Health Care Reform For People With Hiv In The United States -- How To Obtain National Estimates Of Health Care Coverage And Utilization For People With Hiv In The United States-- Conclusions And Recommendations. Committee To Review Data Systems For Monitoring Hiv Care, Board On Population Health And Public Health Practice ; Morgan A. Ford And Carol Mason Spicer, Editors ; Institute Of Medicine Of The National Academies. Includes Bibliographical References. Also Issued Online. Mode Of Access: World Wide Web.