Marfan Syndrome : A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers [to Internet References]

In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Marfan syndrome is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. FORWARD......Page 10 What Is Marfan Syndrome?......Page 12 What Genes Are Related to Marfan Syndrome?......Page 13 Where Can I Find Additional Information about Marfan Syndrome?......Page 14 What Is the Official Name of the FBN1 Gene?......Page 16 Where Is the FBN1 Gene Located?......Page 17 References......Page 18 What Conditions Are Related to the TGFBR2 Gene?......Page 19 Where Is the TGFBR2 Gene Located?......Page 20 Federally Funded Research on Marfan Syndrome......Page 21 The National Library of Medicine: PubMed......Page 31 National Center for Complementary and Alternative Medicine......Page 76 Additional Web Resources......Page 78 General References......Page 79 Book Summaries: Online Booksellers......Page 80 The Basics: Genes and How They Work......Page 83 Genetic Mutations and Health......Page 94 Inheriting Genetic Conditions......Page 100 Genetic Consultation......Page 108 Genetic Testing......Page 110 Gene Therapy......Page 116 The Human Genome Project and Genomic Research......Page 119 NIH Guidelines......Page 122 NIH Databases......Page 123 Other Commercial Databases......Page 126 Patient Guideline Sources......Page 127 Finding Associations......Page 129 Resources for Patients and Families......Page 130 ONLINE GLOSSARIES......Page 131 Online Dictionary Directories......Page 132 MARFAN SYNDROME DICTIONARY......Page 133 INDEX......Page 172 This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Marfan syndrome. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Marfan syndrome. If your time is valuable, this book is for you. First, you will not waste time searching the In Title from PDF title page (viewed on Oct. 8, 2007).