Ignored, Shunned, and Invisible: How the Label Retarded Has Denied Freedom and Dignity to Millions: How the Label Retarded Has Denied Freedom and Dignity to Millions

From the Publisher: Historically, segregation and social isolation have been recurring responses to people considered defective or deficient in some way. And it is in the midst of such a society that special educator J. David Smith wrote this book, which presents critical historical and contemporary issues in mental retardation. Told through gripping vignettes and interwoven with the story of the life of John Lovelace, a man labeled mentally retarded as a child then institutionalized and sterilized, this gripping text will make all readers reconsider not only our social policies and practices, but also our personal actions, in relation to people with mental retardation. Topics covered here include an examination of ways people have been misidentified as having disabilities, then needlessly warehoused in institutions. Coupled with the tragic story of John Lovelace, this book is one that will be long remembered by its readers, and will ideally spur them to action. This book offers new directions for the field of mental retardation, including conceptual and terminology changes regarding intellectual disabilities, and new thinking about the people whose lives have been altered by the term and the concept. Insights from parents, friends, teachers, and varied special education experts are included, as is the strong view of author Smith, who befriended Lovelace. He was often ignored, regularly avoided and treated as less than a person, as invisible, explains Smith. And Lovelace is the metaphorical island to which each chapter here returns, a vivid example of the denial of freedom and dignity to people who bear an intellectually inferior label. In the end, we see how society can promote values that inspire and challenge us to create humane and just treatment for all, or we can just look the other way when facing disturbing human needs Contents 8 Preface 10 Acknowledgments 12 Introduction: Speaking of Mental Retardation 14 Chapter 1 What Are You Going to Do About It? 25 Chapter 2 Minimally Decent Samaritans 33 Chapter 3 Feebleminded: John Lovelace, Patient #6839 40 Chapter 4 ”Patient Is Full Code” 49 Chapter 5 Becoming Invisible 56 Chapter 6 Broken Ties: ”Addressee Unknown” 63 Chapter 7 Looking Backward, Looking Forward 72 Chapter 8 Headaches, Smoking, and Fights: Leaving the Home 84 Chapter 9 Defining Disability Up and Down 94 Chapter 10 John Lovelace and the Mercantile Theory of Mental Retardation 108 Chapter 11 Darwin’s Last Child: Disability, Family, and Friends 121 Chapter 12 ”Fairview Is Nice to Me” 133 Chapter 13 Ethics, Powerlessness, and Informed Consent 144 Chapter 14 Blindness and Finding Yourself in Purgatory 161 Chapter 15 Policies, People, and No Room at the Graveyard 174 Epilogue 185 Notes 188 Bibliography 196 Index 202 A 202 B 202 C 202 D 202 E 203 F 203 G 203 H 203 I 203 J 203 K 203 L 203 M 204 N 204 P 204 R 204 S 204 T 204 U 204 V 204 W 205 Y 205 This is a gripping exploration of mental retardation told through vignettes and the experiences of a man whose life was marred by needless institutionalisation J. David Smith. Includes Bibliographical References (p. [183]-187) And Index.