Healthcare Partnerships for Pediatric Adherence: Promoting Collaborative Management for Pediatric Chronic Illness Care (SpringerBriefs in Public Health Book 0)

This timely professional reference and educational resource applies current concepts of pediatric adherence to medical treatment to create a model for a family-centered, collaborative approach to managing chronic illness. At its core are the latest findings on adherence: the factors that encourage it, the barriers that derail it, and the most effective interventions for its improvement. The book's developmental lens highlights how adherence waxes and wanes across different stages of childhood and adolescence, and specialized chapters analyze social realities exacerbating adherence problems. And its end product is a framework for how patients, parents/caregivers, and providers can work together effectively for improved adherence and optimum outcomes. Included in the coverage: * The scope and impact of nonadherence. * Poverty, stress, and chronic illness management. * Racial/ethnic health disparities and adherence. * Reconsidering the idea of self-management. · Screening for nonadherence in pediatric patients. · A comprehensive behavioral health system for identifying and treating nonadherence. __Healthcare Partnerships for Pediatric Adherence__ offers relevant contemporary perspective for pediatricians looking for new ways to reduce treatment failure, improve support to patients and their families, and promote patient involvement in their own care. Preface 6 Acknowledgements 9 Contents 10 Part I 12 Snapshot from the Field 12 Current Practice and Policy 12 Chapter-1 13 Introduction: Definitions, Scope, and Impact of Nonadherence 13 Introduction 13 “Illness” versus “Disease” 15 Definition of Adherence and Nonadherence 16 Scope of the Problem of Nonadherence 17 The Current Healthcare System is Not Set Up to Promote Adherence to Chronic Illness Care 22 Nonadherence is a Multi-Factorial Problem 24 Larger Societal Issues also Affect Adherence 25 Summary 26 References 27 Chapter-2 31 Conceptualizing Adherence 31 Stress and Coping Models of Illness Adaptation 33 Illness and Treatment Knowledge and Health Literacy 34 Health Beliefs 36 Goal Setting 39 Self Regulation 40 Motivation: Self Determination Theory 42 Putting It All Together 45 References 46 Chapter-3 51 Barriers and Facilitators of Adherence 51 Clinical Factors 51 Individual factors 52 Family Factors 54 Healthcare System and Provider Factors 55 Cultural and Socioeconomic Factors 56 Summary 56 References 57 Chapter-4 61 Interventions to Promote Adherence: Innovations in Behavior Change Strategies 61 Family-Focused Interventions 62 Recent Innovations in Adherence Interventions 63 Provider-Based Intervention Delivery 64 Technology, eHealth, and mHealth 66 Targeting Interventions to the Highest Risk Patients 66 Summary and Conclusions: Adherence Promotion in Clinical Practice 68 References 69 Chapter-5 73 The Importance of Development: Early and Middle Childhood 73 The Role of Temperament 74 Chronic Illness in Early Childhood: Trust and Exploration 75 Early School-Age Children: Developing Competence 76 Older School-Age Children: Where Do I Fit In? 77 Summary 77 References 78 Chapter-6 80 Adherence in Adolescence 80 Adolescence—Definition 81 Adherence in Adolescence 81 Nonadherence as Risk-taking Behavior 82 Two Paths to Risk-taking 83 Neurodevelopmental Changes in the Adolescent Brain 85 Clinical Implications of the Neurodevelopmental Evidence 87 Cognitive Factors in Adolescent Decision-making 89 Risk Perceptions 90 Stress and Adherence 93 Changes in Parenting and Social Support 94 Summary and Conclusions 94 References 96 Chapter-7 100 The Role of Parents 100 Parent Involvement 101 Parenting Styles 101 Parental Control 102 The Transactional Nature of Parenting 104 Miscarried Helping 104 Racial/Ethnic Differences in Parenting 104 Parenting Stress 105 Positive Parenting Can Reduce Risk 106 Evidence-Based Parenting Interventions 106 Summary and Conclusions 107 References 107 Chapter-8 110 Poverty, Stress, and Chronic Illness Management 110 Toxic Stress 111 Adaptation to Stress 113 Does Toxic Stress Contribute to Nonadherence? 114 Managing Toxic Stress 115 Comorbid Risk 116 Conclusions 116 References 117 Chapter-9 1 Racial/Ethnic Disparities and Adherence 1 Overview of Health Disparities among Racial/Ethnic Minority Children 1 Adherence among Racial/Ethnic Minority Children 121 Parent- and Adolescent-Provider Communication and Adherence 122 Factors that Influence Communication Between Minority Families and Healthcare Providers 123 Promoting Effective Parent-Provider and Adolescent-Provider Communication 124 Summary and Conclusions 127 References 127 Part II 131 Implications for Policy and Practice 131 Chapter-10 132 Rethinking Self-Management 132 The Push for Independent Self-Care 132 Current Practice Recommendations 133 The Evidence for Continued Parent Involvement 133 Developmental Readiness 134 Barriers to Parent-Child Collaboration 135 The Catch-22 of Parent Involvement 136 The Most Vulnerable Patients 137 Summary and Conclusions 137 References 138 Chapter-11 141 Healthcare Partnerships 141 Autonomy-Supportive Parenting 142 Autonomy-Supportive Healthcare 143 Provider-Patient Communication is the Key to Building and Maintaining Partnerships 145 Patient-Parent-Provider Teamwork: The Healthcare Partnership or Therapeutic Triad 146 Developing a Shared Model of Illness 148 Coordination of Care 150 The Role of Psychologists 150 Summary and Conclusions 151 References 152 Part III 154 Looking Ahead 154 A Comprehensive Behavioral Health Model for Promoting Pediatric Adherence 154 Chapter-12 155 Screening for Nonadherence in Pediatric Patients 155 Introduction 155 The Importance of Prevention 156 Criteria for Effective Screening 157 Concerns About Screening 161 Tips to Assessing for Nonadherence 162 Summary and Conclusions 163 References 163 Chapter-13 166 A Comprehensive Behavioral Health System for Identifying and Treating Nonadherence 166 Overview of the Comprehensive Model 166 A Web-Based System for Evidence-Based Intervention at All Levels of Risk/need 169 Universal Preventive Services 170 The Public Portal 170 The Patient Portal 171 Mobile App 172 Targeted Services 172 Keeping Patients Connected 174 Training for Healthcare Professionals 174 Summary of the Integrated Behavioral Health System 175 References 177 Chapter-14 178 Pulling it All Together: Clinical Conclusions 178 References 181 Index 182 Front Matter....Pages i-xii Front Matter....Pages 1-1 Introduction: Definitions, Scope, and Impact of Nonadherence....Pages 3-20 Conceptualizing Adherence....Pages 21-40 Barriers and Facilitators of Adherence....Pages 41-50 Interventions to Promote Adherence: Innovations in Behavior Change Strategies....Pages 51-62 The Importance of Development: Early and Middle Childhood....Pages 63-69 Adherence in Adolescence....Pages 71-90 The Role of Parents....Pages 91-100 Poverty, Stress, and Chronic Illness Management....Pages 101-110 Racial/Ethnic Disparities and Adherence....Pages 111-121 Front Matter....Pages 123-123 Rethinking Self-Management....Pages 125-133 Healthcare Partnerships....Pages 135-147 Front Matter....Pages 149-149 Screening for Nonadherence in Pediatric Patients....Pages 151-161 A Comprehensive Behavioral Health System for Identifying and Treating Nonadherence....Pages 163-174 Pulling it All Together: Clinical Conclusions....Pages 175-178 Back Matter....Pages 179-180 "This timely professional reference and educational resource applies current concepts of pediatric adherence to medical treatment to create a model for a family-centered, collaborative approach to managing chronic illness. At its core are the latest findings on adherence: the factors that encourage it, the barriers that derail it, and the most effective interventions for its improvement. The book's developmental lens highlights how adherence waxes and wanes across different stages of childhood and adolescence, and specialized chapters analyze social realities exacerbating adherence problems. And its end product is a framework for how patients, parents/caregivers, and providers can work together effectively for improved adherence and optimum outcomes."--Publisher's website