Health Care Transition : Building a Program for Adolescents and Young Adults with Chronic Illness and Disability

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. __Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability__ is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study.Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, __Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability__ is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition. Front Matter ....Pages i-xvii Front Matter ....Pages 1-1 Introduction: Historical Perspectives, Current Priorities, and Healthcare Transition Processes, Evidence, and Measurement (Patience H. White, Margaret A. McManus)....Pages 3-11 Front Matter ....Pages 13-13 The Anatomical, Hormonal and Neurochemical Changes that Occur During Brain Development in Adolescents and Young Adults (Allan Colver, Gail Dovey-Pearce)....Pages 15-19 The Relationships of Adolescent Behaviours to Adolescent Brain Changes and their Relevance to the Transition of Adolescents and Young Adults with Chronic Illness and Disability (Allan Colver, Gail Dovey-Pearce)....Pages 21-29 Front Matter ....Pages 31-31 Healthcare Transition from the AYASHCN’s Perspective (Isabel Yuriko Stenzel Byrnes)....Pages 33-42 Healthcare Transition from the Family Perspective (Laura G. Buckner)....Pages 43-54 Healthcare Transition from the Pediatric Provider’s Perspective (Cecily L. Betz)....Pages 55-64 Healthcare Transition from the Adult Provider’s Perspective (Nathan Samras, Janet Ma, Stacey Weinstein, Alice A. Kuo)....Pages 65-74 Healthcare Insurance Changes as Youth Become Young Adults (Beth Sufian, James Passamano, Amy Sopchak)....Pages 75-83 Front Matter ....Pages 85-85 Establishing the Administrative Structure and Support for a Healthcare Transition Program (Mary R. Ciccarelli, Jason Woodward)....Pages 87-98 Mobilizing Pediatric Providers (Kathy Sanabria, James Harisiades, Rebecca Boudos, Parag Shah)....Pages 99-105 Developing Transition Policies, Procedures, or Guidelines (Roberta G. Williams, Ellen F. Iverson)....Pages 107-112 Establishing a Method to Monitor Transition Planning and Track Patient Outcomes Following Transfer (Gregory Sawicki)....Pages 113-118 Incorporating Healthcare Transition Readiness Assessment (Lisa A. Schwartz, Alexandra M. Psihogios, Emily M. Fredericks)....Pages 119-128 Employing Healthcare Transition Planning Tools (Constance M. Wiemann, Albert C. Hergenroeder)....Pages 129-138 Understanding the Pediatric and Adult Healthcare System: Adapting to Change (Megumi J. Okumura, Ian S. Harris, Mary Ellen Kleinhenz)....Pages 139-148 Developing the Process for Transferring Care from Pediatric to Adult Providers (Megumi J. Okumura, Erica Lawson)....Pages 149-156 Preparing the Adult Practice to Accept Adolescents and Young Adults (Marybeth R. Jones, Marilyn Augustine, Brett W. Robbins)....Pages 157-161 Establishing a System for Ensuring Transfer Completion (Niraj Sharma, Kitty O’Hare, Ahmet Uluer)....Pages 163-169 Front Matter ....Pages 171-171 Defining Successful Transition: Young Adult Perspective (Teresa Nguyen, Mallory Cyr)....Pages 173-180 Defining Successful Transition: Parent Perspective (Rosemary Alexander, Laura J. Warren)....Pages 181-189 Defining Successful Transition: Pediatric Provider Perspective (Cynthia Fair, Sophie Rupp, Laura C. Hart, Ana Catalina Alvarez-Elias, Martha Perry, Maria Ferris)....Pages 191-200 Defining Successful Transition: Adult Provider Perspective (Gregg Talente)....Pages 201-206 Defining Successful Transition: Payer Perspective (Angelo P. Giardino)....Pages 207-219 Front Matter ....Pages 221-221 Financial Cost of Healthcare Transition (Angelo P. Giardino)....Pages 223-232 Payment for Healthcare Transition Services (Margaret A. McManus, Patience H. White, David Kanter)....Pages 233-238 Front Matter ....Pages 239-239 Healthcare Transition and the Medical Home (Jennifer Lail)....Pages 241-254 The Hospitalist’s Perspective on Healthcare Transition (Ryan J. Coller, Sarah Ahrens, Debra Lotstein)....Pages 255-267 The International Perspective on Healthcare Transition (Beth E. Anderson, Swaran P. Singh, Claire Stansfield, Kristin Liabo)....Pages 269-278 Expanding the Role of the Pharmacist (Nicola J. Gray, Jonathan Burton, Roisin Campbell, Janet E. McDonagh)....Pages 279-292 Legal Issues: Guardianship and Supportive Decision Making (Beth Sufian, James Passamano, Amy Sopchak)....Pages 293-299 Transitioning Adolescents and Young Adults with Medical Complexity (Mary R. Ciccarelli)....Pages 301-312 Transitioning Youth with Intellectual and Developmental Disabilities (Laura Pickler, Janet Hess)....Pages 313-327 Palliative Care in Adolescents and Young Adults with Special Healthcare Needs (Jill Ann Jarrell, Ellen Roy Elias, Tammy I. Kang)....Pages 329-337 Healthcare Transitions and Dental Care (Kimberly Espinoza)....Pages 339-349 Front Matter ....Pages 351-351 A Successful Healthcare Transition Program in a Hospital Setting (Khush Amaria, Miriam Kaufman)....Pages 353-362 Different Healthcare Transition Models (Cecily L. Betz)....Pages 363-377 Front Matter ....Pages 379-379 Conclusions (Constance M. Wiemann, Albert C. Hergenroeder)....Pages 381-382 Back Matter ....Pages 383-394 This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.