Handbook of Oncology Social Work : Psychosocial Care for People with Cancer

The development of this inaugural Handbook of Oncology Social Work: Psychosocial Care for People With Cancer provides a repository of the scope of oncology social workers' clinical practice, education, research, policy and program leadership in the psychosocial care of people with cancer and their families. It focuses on the unique synergy of social work perspectives, values, knowledge, and skills with the psychosocial needs of cancer patients, their families, and the health care systems in which they are treated. It addresses both the science and art of psychosocial care and identifies the increasing specialization of oncology social work related to its unique knowledge base, skills, role, and the progressive complexity of psychosocial challenges for patients with cancer. This Handbook equips the reader with all that we know today in oncology social work about patient and family centered care, distress screening, genetics, survivorship, care coordination, sociocultural and economic diversity, legal and ethical matters, clinical work with adults living with cancer, cancer across the lifespan, their caregivers and families, pediatrics, loss and grief, professional career development, leadership, and innovation. Our hope is that in reading this Handbook you will identify new areas where each of you can leave your mark as innovators and change agents in our evolving field of practice. Cover 1 Handbook of Oncology Social Work Psychosocial Care for People with Cancer @# Edited by Grace Christ, DSW/PhD Professor Emerita, Research Scientist Columbia University School of Social Work Board Chair, Social Work Hospice and Palliative Care Network Ca 4 Copyright 5 Contents 8 Foreword By Edwina Satsuki Uehara 14 Foreword By Lidia Schapira 16 Foreword By Barbara A. Given 18 Preface 20 Acknowledgments 24 Contributors 26 Section I Overview of Oncology Social Work 34 1 Cancer in Contemporary Society: Grounding in Oncology and Psychosocial Care 36 2 Oncology Social Work: Past, Present, and Future 42 3 Integrating Research and Evidence-Based Practice With Clinical Knowledge 48 4 Oncology and Health Care Disparities 54 5 Meeting Psychosocial Health Needs: An Institute of Medicine Report Comes to Life 60 Section II Cancer Across a Continuum of Care: Clinical Practice, Opportunities, and Challenges 66 6 Oncology Social Work Interventions Throughout the Continuum of Cancer Care 68 7 Diagnosis and Initiation of Cancer Treatment 76 8 Sense Making in Living With Cancer as a Chronic Illness 84 9 Cancer Survivorship: Concepts, Interventions, and Research 90 10 Transition to End-of-Life Care in Oncology 98 Section III Psychosocial Challenges of Site-Specific Cancers 106 11 The Biopsychosocial Implications of the Site of the Cancer 108 12 Living With a Rare Cancer Diagnosis: A Survivor’s Perspective 114 13 Working With Men Challenged by Prostate Cancer 120 14 The Many Dimensions of Breast Cancer: Determining the Scope of Needed Services 126 15 Hematologic Cancers: Patients’ Needs for Special Care 134 16 When the Other Shoe Drops: Unique Fears and Challenges of Recurrent Disease 140 Section IV Implementing Distress Screening Initiatives in Oncology 146 17 Distress Screening Guidelines for Oncology Social Workers 148 18 Development of a National Canadian Program for Oncology Stress as the 6th Vital Sign 154 19 Touch-Screen Technology: Using a Problem Checklist for Psychosocial Oncology Screening 162 20 Distress Screening and Responding in an Ambulatory Cancer Center 170 21 Screening and Assessment of Suicide Risk in Oncology 180 22 Using Telehealth to Respond to Distress in Rural and Remote Chemotherapy Clinics 188 23 Next Steps for Psychosocial Screening in Oncology 196 Section V Social Work Research: Challenges and Opportunities 202 24 An Agenda for Oncology Social Work Research: From Bench to Bedside to Trench 204 25 Practice-Relevant Research in Oncology: Science Is What You Do When You Don’t Know What to Do 210 26 Finding Funding for Oncology Social Work Research 220 27 Writing Proposals for Foundations and Governmental Agencies 226 28 Opportunities for Social Work Research in Oncology 234 Section VI Complex Issues Affecting Quality of Life and Quality of Care 240 29 The Convergence of Oncology and Palliative Social Work 242 30 Treatment Adherence 250 31 The Impact of Comorbidities on Cancer Care 256 32 Social Work Practice With Families Affected by Hereditary Cancer 264 33 Pain and Symptom Management 272 34 Sexuality and Cancer 280 35 The Oncology Social Worker and Genomics 288 Section VII Sociocultural and Economic Diversity: Improving Access and Health Outcomes 294 36 Working With Sociocultural and Economic Diversity 296 37 Support for Immigrants, Political Refugees, and Patients Seeking Asylum Who Have Cancer 302 38 Gay, Lesbian, and Bisexual Individuals Diagnosed With Cancer 308 39 Transgender Individuals and Families Affected by Cancer 314 40 Alaska Native, Native American, and First Nation People: Outreach, Screening, and Assessment 320 41 Access to Medical Treatment for African Americans Diagnosed With Cancer: The Current Evidence Base 326 42 Hispanic/Latino Individuals and Families Affected by Cancer: Outreach, Screening, and Assessment 332 43 Working With Chinese Families Impacted by Cancer: An Integrative Body–Mind–Spirit Approach 338 Section VIII Assessment and Intervention With Adults Living With Cancer 344 44 Interventions and Ongoing Assessment With People Living With Cancer 346 45 Time Enough to Make a Difference: Helping Patients Live Well With Advanced Cancer 354 46 Integrating Spirituality in Oncology Care 360 47 Clinical Group Work: Embracing Opportunities, Navigating Challenges 366 48 Assessing and Intervening With the Spectrum of Depression and Anxiety in Cancer 372 49 Using Cognitive and Behavioral Approaches Throughout the Cancer Experience 378 50 Meaning-Making Approaches to Social Work Practice in Oncology 384 51 Schema Therapy With Oncology Patients and Families 390 52 Practice Issues in Social Work and Psychosocial Oncology in Israel 398 53 Oncology Social Work Practice in Integrative Medicine 404 Section IX Interventions With Families and Caregivers in Oncology 410 54 Introduction to Working With Families in Oncology 412 55 Caregivers of Cancer Patients 418 56 Psychosocial Interventions With Couples Affected by Cancer 424 57 Managing Family Conflict: Providing Responsive Family Care at the End of Life 432 58 Family and Team Conferencing in Oncology 442 Section X Interventions With Parental Cancer, Dependent Children, and Adolescents 450 59 Parental Cancer: Developmentally Informed Practice Guidelines for Family Consultation and Communication 452 60 Single Parents Coping With Cancer and Children 462 61 A Parallel Group Program for Parents and Children: Using Expressive Techniques and Activities to Facilitate Communication 468 Section XI Pediatrics: Assessment and Interventions With Children and Adolescent Cancer Patients—The Unique Challenges of Pediatric Oncology 476 62 Interventions for Children Under Age 15 Living With Cancer 480 63 Interventions for Adolescents Living With Cancer 490 64 The Family Experience in Pediatric Oncology 498 65 Helping Siblings of Pediatric Cancer Patients 506 66 Reaching Out to Culturally Diverse Populations in Pediatric Oncology 518 67 Pediatric Cancer Survivors 524 68 Pediatric Palliative Care 532 Section XII Impact of a Cancer Diagnosis Across the Adult Life Span 538 69 Young Adults (20 to 39) With Cancer 540 70 Parents of Younger Adults With Cancer 548 71 Cancer and Middle-Aged Adults (40 to 64) 554 72 Cancer and Older Adults (65 Plus) 560 73 Working With Families of Older Adults With Cancer 568 Section XIII Loss, Grief, and Bereavement 574 74 Understanding Bereavement: How Theory, Research, and Practice Inform What We Do 576 75 Spousal/Intimate Partner Loss and Bereavement 586 76 Mourning the Death of a Child 594 77 Developing Culturally Informed Research on Bereavement Interventions 604 78 Leading Bereavement Groups 612 Section XIV Patient- and Family-Centered Care: Social Work Role and Organizational Models for Psychosocial Services 618 79 Patient- and Family-Centered Care: A National Mandate and Social Work Goal 620 80 Integrated Interdisciplinary Staff Leadership Model of Patient-Centered Care 628 81 Directing Stand-Alone Social Work Department Models 634 82 Creating Innovative Cancer Support Programs in Community Cancer Centers 642 83 Managing Volunteer Services in Oncology 648 Section XV Bioethical and Policy Issues in Oncology Social Work 656 84 Historic and Current Perspectives on Health Care Reform 658 85 Bioethical Issues in Oncology and the Social Work Response 666 86 Improving Pain Care Policy: Implications for Social Work Advocacy 674 Section XVI Care Coordination, Managing Transitions, and Providing Resources 682 87 Transitions During Cancer Care 684 88 Patient Navigation in Oncology 692 89 Bridging Increasing Financial Gaps and Challenges in Service Delivery 700 90 The Importance of Patient Education 706 91 Legal Issues That Affect Quality of Life for Oncology Patients and Their Caregivers 712 Section XVII Practice Settings: Where Oncology Social Workers Work 718 92 Oncology Social Work Across Sites of Care 720 93 Oncology Social Work Practice in Hospitals and Cancer Centers 726 94 Veterans and Cancer 734 95 The Evolving Role for Oncology Social Workers in Business 740 Section XVIII Professional Development and Education 746 96 Supervision and Professional Development 748 97 Life as an Oncology Social Worker: Career Planning and Professional Development 756 98 Grant-Funded Educational Programs in Psychosocial Oncology 764 99 Vicarious Resilience: Sustaining a Career Over the Long Haul 770 100 The American Cancer Society’s Contributions to Oncology Social Work 778 101 APOSW and AOSW: Education and Development of Professional Networks 784 102 OSW-C: The Importance of Certification for Oncology Social Workers 790 103 NASW and Oncology Social Work 796 Section XIX Building Resilience in Interprofessional Practice 802 104 Building Resilience: A Multifaceted Support Program for Professional and Support Staff in a Cancer Center 804 105 How Oncology Professionals Manage the Emotional Intensity of Their Work 810 106 Developing Core Competencies for Interprofessional Teams: A Script-Reading Approach 818 107 Schwartz Center Rounds®: Process, Outcomes, and Opportunities for Improving Interprofessional Practice 826 108 Maintaining Competent Teams in Pediatric Oncology 834 Epilogue: Oncology Social Work Leadership: Innovators in a Changing World 842 Index 848