Handbook of Children with Special Health Care Needs

Handbook of Children with Special Health Care Needs David Hollar, editor Children with chronic conditions, developmental disorders, and birth defects represent a sizeable minority of American children-as many as one in five. Often their families have financial or other issues limiting their access to appropriate care, thus limiting their adult prospects as well. Compounding the problem, many valuable resources concerning this population are difficult to access although they may be critical to the researchers, practitioners, and policymakers creating standards for quality care and services. In response, the Handbook of Children with Special Health Care Needs assembles research, applied, and policy perspectives reflecting the range of children's problems requiring special services. Widely studied conditions (e.g., communication disorders, substance abuse) and those receiving lesser attention (e.g., tuberculosis) are covered, as are emerging ideas such as the "medical home" concept of continuity of care. Contributors offer screening and evaluation methods, research guidelines, and diagnostic and treatment interventions to inform the greatest spectrum of readers, including: Quality of life in children diagnosed with ADHD or specific learning disabilities Evaluating school-aged children with visual impairments Deaf culture advocates on deaf learners' education Oral health access issues in children requiring special services Diagnostic and treatment issues in fetal alcohol spectrum disorders Addressing and preventing bullying of children with special health care needs Its interdisciplinary outlook makes the Handbook of Children with Special Health Care Needs a vital, forward-looking text for developmental psychologists, pediatricians, early childhood and special education researchers and practitioners, disability researchers, policymakers, and advocates, and providers for children with special health care needs Front Matter....Pages 1-1 Policy: Its History, Intentions, and Consequences for Children with Special Health Care Needs....Pages 1-22 Severe Communication Disorders....Pages 23-46 Attention-Deficit/Hyperactivity Disorder (ADHD), Perceived Competence, and Self-Worth: Evidence and Implications for Students and Practitioners....Pages 47-72 Quality of Life in Children Diagnosed with Specific Learning Disability or Attention-Deficit/Hyperactivity Disorder....Pages 73-85 Children and Adolescents with Mobility Limitations....Pages 87-105 Rethinking Deaf Learners’ Education: A Human Rights Issue....Pages 107-130 Childhood Eye Disorders and Visual Impairment....Pages 131-152 Evaluating School-Aged Children with Visual Disabilities....Pages 153-167 Oral Health Access Issues for Children with Special Health Care Needs....Pages 169-188 Tuberculosis: The Special Needs of Children....Pages 189-211 Children with Multiple Sclerosis....Pages 213-230 Fetal Alcohol Spectrum Disorders: Review of Teratogenicity, Diagnosis and Treatment Issues....Pages 231-258 Newborn Screening for Congenital Disorders in Routine and Research....Pages 259-269 Genetic and Metabolic Conditions for Children with Special Health Care Needs....Pages 271-287 Development from Conception through Adolescence: Physiological and Psychosocial Factors Impacting Children with Special Health Care Needs....Pages 289-306 Using Population-Based Survey Data to Monitor the Health of Children and Youth with Special Health Care Needs and Disabilities....Pages 307-334 Secondary Conditions in Youth with Disabilities....Pages 335-351 Accessible Substance Abuse Prevention for All Children....Pages 353-368 Research Methods and Epidemiology for Children with Special Health Care Needs....Pages 369-382 Addressing Bullying Among Students with Disabilities Within a Multi-Tier Educational Environment....Pages 383-397 Building a Medical Home for Children and Youth with Special Health Care Needs....Pages 399-418 Epilogue: Advancing Health Outcomes and Social Participation for CSHCN....Pages 419-421 Back Matter....Pages 415-415 Children with chronic conditions, developmental disorders, and birth defects represent a sizeable minority of American children -as many as one in five. Often their families have financial or other issues limiting their access to appropriate care, thus limiting their adult prospects as well. Compounding the problem, many valuable resources concerning this population are difficult to access although they may be critical to the researchers, practitioners, and policymakers creating standards for quality care and services. In response, the Handbook of Children with Special Health Care Needs assembles research, applied, and policy perspectives reflecting the range of children's problems requiring special services. Widely studied conditions (e.g., communication disorders, substance abuse) and those receiving lesser attention (e.g., tuberculosis) are covered, as are emerging ideas such as the "medical home" concept of continuity of care. Its interdisciplinary outlook makes the Handbook of Children with Special Health Care Needs a vital, forward-looking text for developmental psychologists, pediatricians, early childhood and special education researchers and practitioners, disability researchers, policymakers, and advocates, and providers for children with special health care needs This book assembles research, application and policy perspectives on children's problems requiring special services. Covers communication disorders and substance abuse, and explores such emerging ideas as the "medical home" concept of continuity of care.