Genomics and society : ethical, legal, cultural and socioeconomic implications

__Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications__ is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011. The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system. Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine. * Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011 * Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system * Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more Content: Front-matter,Copyright,Dedication,List of Contributors,Foreword,Preface: Introduction to Social and Economic Genomics,AcknowledgmentsEntitled to full textChapter 1 - Personal Genomics and its Sociotechnical Transformations, Pages 1-20, Richard Tutton Chapter 2 - Genetics, Genomics, and Society: Challenges and Choices, Pages 21-37, Angus Clarke Chapter 3 - Genomics and Patient Empowerment, Pages 39-68, Marion McAllister Chapter 4 - The Expanding Scope of Gen-Ethics, Pages 69-81, Ruth Chadwick Chapter 5 - Health Economic Perspectives of Genomics, Pages 83-117, Sarah Wordsworth, James Buchanan, Adrian Towse Chapter 6 - Legal Aspects of Health Applications of Genomics, Pages 119-133, Ellen Wright Clayton, Ma’n Zawati Chapter 7 - Genomics, Patents, and Human Rights, Pages 135-146, Michiel Korthals Chapter 8 - Teaching Genetics and Genomics for Social and Lay Professionals, Pages 147-164, Sandie Gay, Michelle Bishop, Stuart Sutherland Chapter 9 - Engaging and Empowering Public and Professionals in Genomics, Pages 165-192, Maggie Kirk, Rachel Iredale, Rhian Morgan, Emma Tonkin Chapter 10 - The “Life Costs” of Living with Rare Genetic Diseases, Pages 193-206, Koichi Mikami, Alastair Kent, Gill Haddow Chapter 11 - Genomics and the Bioeconomy: Opportunities to Meet Global Challenges, Pages 207-238, Gerardo Jiménez-Sánchez, Jim Philp Chapter 12 - Socioeconomic Outcomes of Genomics in the Developing World, Pages 239-258 Chapter 13 - Roles of Genomics in Addressing Global Food Security, Pages 259-270, Denis J Murphy Chapter 14 - Genomics and Traditional Indian Ayurvedic Medicine, Pages 271-292, Mitali Mukerji, Bhavana Prasher Chapter 15 - Genomics and Traditional Chinese Medicine, Pages 293-308, Wei Wang Chapter 16 - Human Genetics and Genomics and Sociocultural Beliefs and Practices in South Africa, Pages 309-319, Himla Soodyall, Jennifer G. R Kromberg Chapter 17 - Genomics and Spirituality, Pages 321-333, Michael Ruse Chapter 18 - The Sociodemographic and Economic Correlates of Consanguineous Marriages in Highly Consanguineous Populations, Pages 335-361, Hanan Hamamy, Sura Alwan Chapter 19 - The International Law and Regulation of Medical Genetics and Genomics, Pages 363-387, Atina Krajewska Glossary: “Genomics and Society”*, Pages 389-399 Index, Pages 401-413

Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.

The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.

Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.

• Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011
• Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system
• Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more