Genetics and Gene Therapy (The International Library of Medicine, Ethics and Law)

Genetics and Gene Therapy shows the wide range of the debate and the very real significance that genetics and its associated developments have for human beings, individually and collectively. Few areas of science and medicine have resulted in the volume of academic and popular literature as has genetics. The so-called revolution in understanding of the causes of disease states, and even behavioural traits, has focussed public attention on the influence of genes in making us what we are. Rapidly, however, the potential benefits of such understanding were overtaken, in the public mind at least, by the question of the possible (negative) implications of genetic knowledge and associated technologies. The chapters in this volume show just how wide-ranging concern has become, ranging from regulation to cloning, with the fear of discrimination in between. Part One begins with a range of general discussions of about the genetic enterprise itself, followed by consideration of some specific questions. Part Two then addresses cutting edge debates in genetics. Cover Half Title Title Page Copyright Page Table of Contents Acknowledgements Series Preface Introduction Part I Genetics - General 1 Julian Kinderlerer and Diane Longley (1998), 'Human Genetics: The New Panacea?', Modern Law Review, 61, pp. 603-20 2 Julia Black (1998), 'Regulation as Facilitation: Negotiating the Genetic Revolution', Modern Law Review, 61, pp. 621-60 3 Darryl Macer (1991), 'Whose Genome Project?', Bioethics, 5, pp. 183-211 4 Sheila A.M. McLean (2001), 'The Gene Genie: Good Fairy or Wicked Witch?', Studies in History and Philosophy of Biological and Biomedical Sciences, 32, pp.723-39 5 John A. Robertson (2003), 'Procreative Liberty in the Era of Genomics', American Journal of Law and Medicine, 29, pp. 439-87 6 Susan M. Wolf (1995), 'Beyond "Genetic Discrimination": Toward the Broader Harm of Geneticism', Journal of Law, Medicine and Ethics, 23, pp. 345-53 7 Deborah Hellman (2003), 'What Makes Genetic Discrimination Exceptional?', American Journal of Law and Medicine, 29, pp. 77-116 8 Dean Bell and Belinda Bennett (2001), 'Genetic Secrets and the Family', Medical Law Review, 9, pp. 130-61 9 Lawrence O. Gostin (1995), 'Genetic Privacy', Journal of Law, Medicine and Ethics, 23, pp. 320-30 10 Graeme T. Laurie (2001), 'Challenging Medical-Legal Norms: The Role of Autonomy, Confidentiality, and Privacy in Protecting Individual and Familial Group Rights in Genetic Information', Journal of Legal Medicine, 22, pp. 1-54 11 Philippa Gannon and Charlotte Villiers (1999), 'Genetic Testing and Employee Protection', Medical Law International, 4, pp. 39-57 12 Allen Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John Robertson and Baruch Brody (2002), 'Pharmacogenetics: Ethical Issues and Policy Options', Kennedy Institute of Ethics Journal, 12, pp. 1-15 Part II Gene Therapy/Testing/Cloning 13 Heather Draper and Ruth Chadwick (1999), 'Beware! Preimplantation Genetic Diagnosis May Solve Some Old Problems But It Also Raises New Ones', Journal of Medical Ethics, 25, pp. 114-20 14 Lainie Friedman Ross (2002), 'Predictive Genetic Testing for Conditions that Present in Childhood', Kennedy Institute of Ethics Journal, 12, pp. 225-44 15 Stephen Robertson and Julian Savulescu (2001), 'Is there a Case in Favour of Predictive Genetic Testing in Young Children?', Bioethics, 15, pp. 26-49 16 Mark S. Frankel (2003), 'Inheritable Genetic Modification and a Brave New World: Did Huxley Have it Wrong?', Hastings Center Report, 33, pp. 31-36 17 Sara Goering (2000), 'Gene Therapies and the Pursuit of a Better Human', Cambridge Quarterly of Healthcare Ethics, 9, pp. 330-41 18 George J. Annas, Lori B. Andrews and Rosario M. Isasi (2002), 'Protecting the Endangered Human: Toward an International Treaty Prohibiting Cloning and Inheritable Alterations', American Journal of Law and Medicine, 28, pp. 151-78 19 John Harris (1997), '''Goodbye Dolly?" The Ethics of Human Cloning', Journal of Medical Ethics, 23, pp. 353-60 20 Carson Strong (1998), 'Cloning and Infertility', Cambridge Quarterly of Healthcare Ethics, 7, pp. 279-93 21 Julian Savulescu (1999), 'Should We Clone Human Beings? Cloning as a Source of Tissue for Transplantation', Journal of Medical Ethics, 25, pp. 87-95 22 Søren Holm (2002), 'Going to the Roots of the Stem Cell Controversy', Bioethics, 16, pp. 493-507 23 John Harris (2003), 'Stem Cells, Sex, and Procreation', Cambridge Quarterly of Healthcare Ethics, 12, pp. 353-71 24 Roger Brownsword (2002), 'Stem Cells, Superman, and the Report of the Select Committee', Modern Law Review, 65, pp. 568-87 Name Index 1. Human Genetics : The New Panacea? / Julian Kinderlerer And Diane Longley -- 2. Regulation As Facilitation : Negotiating The Genetic Revolution / Julia Black -- 3. Whose Genome Project? / Darryl Macer -- 4. The Gene Genie : Good Fairy Or Wicked Witch? / Sheila A. M. Mclean -- 5. Procreative Liberty In The Era Of Genomics / John A. Robertson -- 6. Beyond Genetic Discrimination : Toward The Broader Harm Of Geneticism / Susan M. Wolf -- 7. What Makes Genetic Discrimination Exceptional? / Deborah Hellman -- 8. Genetic Secrets And The Family / Dean Bell And Belinda Bennett -- 9. Genetic Privacy / Lawrence O. Gostin -- 10. Challenging Medical-legal Norms : The Role Of Autonomy, Confidentiality, And Privacy In Protecting Individual And Familial Group Rights In Genetic Information / Graeme T. Laurie -- 11. Genetic Testing And Employee Protection / Philippa Gannon And Charlotte Villiers -- 12. Pharmacogenetics : Ethical Issues And Policy Options / Allen Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth Mcpherson, John Robertson And Baruch Brody -- 13. Beware! : Preimplantation Genetic Diagnosis May Solve Some Old Problems But It Also Raises New Ones / Heather Draper And Ruth Chadwick -- 14. Predictive Genetic Testing For Conditions That Present In Childhood / Lainie Friedman Ross -- 15. Is There A Case In Favour Of Predictive Genetic Testing In Young Children? / Stephen Robertson And Julian Savulescu -- 16. Inheritable Genetic Modification And A Brave New World : Did Huxley Have It Wrong? / Mark S. Frankel -- 17. Gene Therapies And The Pursuit Of A Better Human / Sara Goering -- 18. Protecting The Endangered Human : Toward An International Treaty Prohibiting Cloning And Inheritable Alterations / George J. Annas, Lori B. Andrews And Rosario M. Isasi -- 19. Goodbye Dolly? : The Ethics Of Human Cloning / John Harris -- 20. Cloning And Infertility / Carson Strong -- 21. Should We Clone Human Beings? : Cloning As A Source Of Tissue For Transplantation / Julian Savulescu -- 22. Going To The Roots Of The Stem Cell Controversy / Soren Holm -- 23. Stem Cells, Sex, And Procreation / John Harris -- 24. Stem Cells, Superman, And The Report Of The Select Committee / Roger Brownsword. Edited By Sheila A.m. Mclean. Includes Bibliographical References And Index.