Follow-Up for NICU Graduates : Promoting Positive Developmental and Behavioral Outcomes for At-Risk Infants

This book examines the role of Neonatal Intensive Care Units (NICUs) and follow-up clinics in addressing the complex developmental, behavioral, social, and medical needs of at-risk infants through early intervention and medical subspecialties. It describes the necessary functional components of follow-up clinics and challenges in establishing and running multidisciplinary clinics in an area of difficult heath care financing. Chapters provide essential guidelines for determining which neonates will need follow-up care, evaluating for neurodevelopmental delays and medical and behavioral impairment and disability, and estimating how long intervention and further follow-up will be required. Chapters also discuss organization, staffing, funding, testing protocols, and coordination with other programs and care facilities, particularly early intervention and the medical home. In addition, the book offers best practices for fostering optimal development for individual infants and high-risk populations while raising standards for neonatal care and creating a smooth transition to appropriate subsequent care. Topics featured in this book include: * Developmental care in the nursery. * Utilizing neonatal brain imaging to predict neurodevelopmental outcomes of NICU infants. * Genetic considerations in infants with congenital anomalies. * The HRIF clinic organization model. * Issues common in neurodevelopmental testing of premature infants. * The impact of environmental risks, such as parental distress and in-utero drug exposure, to infant neurodevelopment. __Follow-Up for NICU Graduates__ is a must-have resource for researchers, practitioners, and graduate students in developmental psychology, pediatrics, neuroscience, obstetrics, nursing, and related disciplines. Front Matter ....Pages i-xi Front Matter ....Pages 1-1 Introduction (Howard Needelman)....Pages 3-12 Front Matter ....Pages 13-13 Developmental Care in the Nursery (Sandra Willett)....Pages 15-58 Utilizing Neonatal Brain Imaging to Predict Neurodevelopmental Outcomes (Eric S. Peeples)....Pages 59-88 Social-Emotional Development in Early Childhood: Normative, NICU Considerations, and Application in NICU Follow-Up Programs for At-Risk Infants and Their Families (Robin H. Adair)....Pages 89-95 Front Matter ....Pages 97-97 Premature Infants: Issues Associated with Prematurity (Marie A. Clark, Nina Sand-Loud)....Pages 99-110 Premature Infants: The Behavioral Phenotype of the Preterm Survivor (Paige Terrien Church, Rudaina Banihani, Maureen Luther, Patricia Maddalena, Elizabeth Asztalos)....Pages 111-126 The Late Preterm Infant (Katherine Steingass, Lindsay Bartram, Anita Narayanan)....Pages 127-154 Neonatal Encephalopathy (Rudaina Banihani, Paige Terrien Church, Maureen Luther, Patricia Maddalena, Elizabeth Asztalos)....Pages 155-178 Genetic Considerations in Infants with Congenital Anomalies (Elizabeth A. Sellars, G. Bradley Schaefer)....Pages 179-188 Environmental Risks to NICU Outcomes (Douglas Vanderbilt, Christine Mirzaian, Kelly Schifsky)....Pages 189-203 Front Matter ....Pages 205-205 HRIF Clinic Organization: A Statewide Approach (Anne DeBattista)....Pages 207-219 Personnel in the NICU Follow-Up Clinic (Cheryl A. Milford)....Pages 221-233 Financing NICU Follow-Up Programs (Lauren A. Boyd)....Pages 235-239 Issues in Neurodevelopmental Testing of Infants Born Prematurely: The Bayley Scales of Infant Development Third Edition and Other Tools (Glen P. Aylward)....Pages 241-253 Best Practices in Test Construction for Developmental-Behavioral Measures: Quality Standards for Reviewers and Researchers (Frances Page Glascoe, John Cairney)....Pages 255-279 Front Matter ....Pages 281-281 Primer on Special Education (Holly Roberts, Benjamin Kennert)....Pages 283-292 Early Intervention for NICU Graduates (Kerry Miller)....Pages 293-311 Quality Coordinated Health Care for the High-Risk Infant: The Evolving Concept of the Medical Home (Linda Copeland, Shalin Parekh)....Pages 313-335 The State of Neonatal Follow-Up Programs (Brian Tang)....Pages 337-341 Front Matter ....Pages 343-343 Concluding Thoughts (Howard Needelman)....Pages 345-351 Back Matter ....Pages 353-359 This innovative text for Neonatal Nurses and NICU clinicians introduces new, evidence-based care protocols proven to mitigate or reduce the profound morbidities and subsequent developmental challenges that afflict newborns in the NICU. The book reframes the concept of developmentally supportive care to trauma-informed, age-appropriate care of the hospitalized premature infant. Aimed at transforming NICU practice, the book links developmental care to quality standards and Joint Commission requirements. The text is also unique in its provision of engaging online learning activities that facilitate the translation of content into clinical practice, whereby the user can also earn CEUs. The text highlights the ways in which Nightingale's tenets of nursing and Watson's theory of human caring science resonate with the its subject matter and are applied in the NICU. It includes examples of favorable outcomes associated with the protocols described in this book from practitioners in the U.S. and overseas. Additionally, the text aligns with NANN guidelines for Age Appropriate Care of the Premature and Hospitalized Infant. This book will provide the neonatal nurse/APN with best available, evidence-based caring strategies to consistently and reliably manage the trauma associated with the NICU experience and mitigate both short-term and long-term complications associated with this developmental trauma. Key Features: Introduces cutting-edge, evidence-based care protocols proven to reduce the profound morbidities and developmental challenges of premature infants Reframes the concept of developmentally supportive care to trauma-informed, age-appropriate care Meets Joint Commission requirements for age-appropriate staff education Includes examples from researchers and practitioners worldwide Presents innovative online learning activities to facilitate translation of content to clinical practice "This book examines the role of Neonatal Intensive Care Units (NICUs) and follow-up clinics in addressing the complex developmental, behavioral, social, and medical needs of at-risk infants through early intervention and medical subspecialties. It describes the necessary functional components of follow-up clinics and challenges in establishing and running multidisciplinary clinics in an area of difficult heath care financing. Chapters provide essential guidelines for determining which neonates will need follow-up care, evaluating for neurodevelopmental delays and medical and behavioral impairment and disability, and estimating how long intervention and further follow-up will be required. Chapters also discuss organization, staffing, funding, testing protocols, and coordination with other programs and care facilities, particularly early intervention and the medical home. In addition, the book offers best practices for fostering optimal development for individual infants and high-risk populations while raising standards for neonatal care and creating a smooth transition to appropriate subsequent care. Topics featured in this book include: Developmental care in the nursery. Utilizing neonatal brain imaging to predict neurodevelopmental outcomes of NICU infants. Genetic considerations in infants with congenital anomalies. The HRIF clinic organization model. Issues common in neurodevelopmental testing of premature infants. The impact of environmental risks, such as parental distress and in-utero drug exposure, to infant neurodevelopment. Follow-Up for NICU Graduates is a must-have resource for researchers, practitioners, and graduate students in developmental psychology, pediatrics, neuroscience, obstetrics, nursing, and related disciplines."-- Provided by publisher Meets The Joint Commission requirements for age-appropriate staff education--Book Jacket