Floppy : tales of a genetic freak of nature at the end of the world : a disjointed memoir

When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like? "Alyssa Graybeal is a queer writer and cartoonist whose work is a witty take on daily life with chronic illness, the connective tissue disorder Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World is her first book and won the 2020 Red Hen Press Nonfiction Book Award. She earned a BA from McGill University and an MLIS from Dalhousie University, and she works in library nonprofits from her home in Astoria, Oregon. You can find her delightfully deadpan comics on Instagram @floppyqueerdo"-- Provided by publisher