Families in the Intensive Care Unit : A Guide to Understanding, Engaging, and Supporting at the Bedside

This text is one of the first comprehensive resources on understanding and working with families in the intensive care unit. The text provides a conceptual overview of the Family ICU Syndrome, a constellation of physical morbidity, psychopathology, cognitive deficits, and conflict. Outlining its mechanisms, the book presents a guide to combating the syndrome with an interdisciplinary team. The text represents the full array of the interdisciplinary team by also spotlighting administrative considerations for health care management and approaches to training different members of the health care team. Family voices are featured prominently in the text as well. The book also addresses the complete trajectory of needs of care, including survivorship and end-of-life care. Written by experts in the field, __Families in the Intensive Care Unit:__ __A Guide to Understanding, Engaging and Supporting at the Bedside__ is a state-of-the-art reference for all clinicians who work with families in the ICU. Front Matter ....Pages i-xx An Introduction and Overview of Why Families Matter in the Intensive Care Unit (Giora Netzer)....Pages 1-7 Family Voices from the Intensive Care Unit (Eileen Rubin, Sal Colianni)....Pages 9-15 Cognitive Barriers to Effective Surrogate Decision-Making (Joanna L. Hart, Scott D. Halpern)....Pages 17-30 Emotional Processing/Psychological Morbidity in the ICU (Ramona O. Hopkins)....Pages 31-47 Family Psychological Morbidity After the Intensive Care Unit (Kristina Stepanovic, Julie Van, James C. Jackson)....Pages 49-59 Sleep and Sleep Deprivation Among Families in the ICU (Stuti J. Jaiswal, Robert L. Owens)....Pages 61-75 Taking the Lead: Changing the Experience of Family ICU Syndrome by Changing the Organization of Care (Donald L. Zimmerman)....Pages 77-89 Unique Challenges for Family Members of Patients with Acute and Chronic Critical Illness: The Older Caregiver (Nicole Roeder, Margaret A. Pisani)....Pages 91-99 Family Support and ICU Survivorship: Lessons Learned from the Pediatric Critical Care Experience (Bree Andrews, Nilu Rahman, Neethi Pinto)....Pages 101-118 Life After the ICU: Post-intensive Care Syndrome in Family Members (Jason H. Maley, Julie Rogan, Mark E. Mikkelsen)....Pages 119-131 Humanizing Intensive Care: Questions, Balance, and Tragic Trade-Offs (Samuel M. Brown, Michael E. Wilson, Chris Benda, Negin Hajizadeh, Ramona O. Hopkins)....Pages 133-150 Intensive Care Unit Conflicts and the Family (O. Joseph Bienvenu)....Pages 151-159 Identifying, Analyzing, and Combating Family Intensive Care Unit Syndrome in Long-Term Acute Care Hospitals (Arunmozhi Aravagiri, Waqas Bhatti, Jetina Okereke, Avelino C. Verceles)....Pages 161-177 Personalized Interventions to Support Families in the Intensive Care Unit (Christopher E. Cox)....Pages 179-186 Family-Centered Care Interventions to Minimize Family Intensive Care Unit Syndrome and Post-intensive Care Syndrome-Family (Judy Elisa Davidson, Janet Marty Mendis, Truong-Giang Huynh, Samantha Gambles Farr, Suzette Jernigan, Steffanie A. Strathdee et al.)....Pages 187-215 Strategies to Facilitate Communication with Families in the ICU (Andre Carlos Kajdacsy-Balla Amaral)....Pages 217-229 End-of-Life Care (Jennifer L. McAdam)....Pages 231-249 The Integrative Approach to Supporting Families in the ICU (Delia Chiaramonte)....Pages 251-263 The Role of Ethics Consultation in Enhancing Family-Centered Care (Henry J. Silverman)....Pages 265-275 Family Role in Patient Safety in the Intensive Care Unit (A. Doran Bostwick, Sarah J. Beesley)....Pages 277-287 Family and Patient Spiritual Narratives in the ICU: Bridging Disclosures through Compassion (Simon Lasair, Shane Sinclair)....Pages 289-300 The Role of the Pharmacist in Family Engagement in the Intensive Care Unit and During Transitions of Care (Joanna L. Stollings)....Pages 301-314 Respiratory Therapy and Family Engagement in the Intensive Care Unit (Deborah Linehan, Giora Netzer)....Pages 315-326 The Role of the ICU Social Worker in Supporting Families (John G. Cagle, Morgan Bunting)....Pages 327-342 Rehabilitation (Kimberley Haines)....Pages 343-356 Training Providers in Family-Centered Care (Erin K. Kross, Catherine L. Hough)....Pages 357-364 Child Life in the Adult ICU: Including the Youngest Members of the Family (Jaime E. Bruce, Kathleen McCue)....Pages 365-379 How to Study the Family ICU Syndrome: A Basic Approach to Research Methodology (Christiane S. Hartog)....Pages 381-391 Back Matter ....Pages 393-400