Comprehensive handbook of childhood cancer and sickle cell disease: a biopsychosocial approach for mental health professionals

Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationshipsThe Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes. I. Introduction -- 1. Introduction : Why The Need For A Comprehensive Handbook On Pediatric Psychosocial Oncology/hematology / Ronald T. Brown -- 2. Cancer And Blood Disorders In Childhood : Biopsychosocial Developmental Issues In Assessment And Treatment / F. Daniel Armstrong -- Ii. The Cancer Experience On Treatment -- 3. Stress And Coping In The Pediatric Cancer Experience / Mary Jo Kupst And Kristin Bingen -- 4. Familial Issues When A Child Is On Treatment For Cancer / Melissa Alderfer And Anne E. Kazak -- 5. Psychosocial And Behavioral Issues In Stem Cell Transplantation / Sean Phipps -- 6. Peer, Friendship Issues And Emotional Well-being / Bernard Fuemmeler, Larry Mullins, And Melissa Y. Carpentier -- 7. Pain And Procedure Management / Paola Conte And Gary Walco -- 8. Adherence To Treatment Demands / Michael Rapoff, Anne Mcgrath, And Stephen Smith -- 9. Quality Of Life In Childhood Cancer : Meaning, Methods And Missing Pieces / Rachel B. Levi --^ 10. Spirituality, Complementary, And Alternative Medicine / Cynthia Myers, Margaret Stuber, And Lonnie Zeltzer -- 11. A Goodness-of-fit Ethic For Informed Consent To Pediatric Cancer Patients / Celia Fisher And Jessica K. Masty -- 12. Problem-solving Skills For Mothers Of Children With Newly Diagnosed Cancer / Ollie Jane Z. Sahler [and Others] -- Iii. Cancer Late Effects Off Treatment -- 13. Psychological And Social Effects Of Surviving Childhood Cancer / Anna Marsland, Linda Ewing, And Amanda Thompson -- 14. Neuropsychological Late Effects / Raymond Mulhern And Robert W. Butler --15. Post Traumatic Stress And Post Traumatic Growth In Childhood Cancer Survivors And Their Parents / Margaret L. Stuber -- 16. Interventions For Cancer Late Effects And Survivorship / Robert W. Butler And Donna R. Copeland -- 17. Maximizing School, Academic, And Social Outcomes In Children And Adolescents With Cancer / Ernest Katz And Avi Madan-swain --^ Iv. Palliative Care And End Of Life Issues --18. Issues In Palliative Care / David J. Bearison -- 19. Loss And Grief / Joanna Breyer [and Others] -- V. Prevention Of Primary And Secondary Malignancies -- 20. Genetic Issues / Andrea Farkas Patenaude & Katherine Schneider -- 21. Smoking Cessation / Vida L. Tyc -- 22. Health Promotion And Primary Prevention Of Cancer / Dawn K. Wilson And Sarah F. Griffin -- Vi. Sickle Cell Disease -- 23. Biopsychosocial And Developmental Issues Related To Sickle Cell Disease / Kathryn Gustafson [and Others] -- 24. Neuropsychological Aspects Of Sickle Cell Disease / Jeffrey Schatz And Eve Puffer -- 25. Psychosocial Adaptation Of Children And Adolescents With Sickle Cell Disease / Lamia Barakat [and Others] -- 26. Family Systems Issues In Pediatric Sickle Cell Disease / Jerilynn Radcliffe, Lamia Barakat, And Rhonda C. Boyd -- 27. Issues In Pain Management Of Sickle Cell Disease / Nicole F. Swain, Monica J. Mitchell, And Scott W. Powers --^ Vii. Training, Funding, And Collaborative Endeavors -- 28. Training In Pediatric Psychosocial Hematology/oncology / Daniel L. Clay And T. David Elkin -- 29. Research Opportunities And Collaborative Multi-site Studies In Psychosocial Hematology/oncology / Stanley Whitsett, F. Daniel Armstrong, And Brad H. Pollock -- Viii. A Prospective And Retrospective View Of Pediatric Hematology/oncology -- 30. A Prospective And Retrospective View Of Pediatric Hematology/oncology / John J. Spinetta, Giuseppe Masera And Momcilo Jankovic. Edited By Ronald T. Brown. Includes Bibliographical References And Index. Contents......Page 8 Contributors......Page 12 I. Introduction......Page 18 Why a Comprehensive Handbook on Pediatric Psychosocial Oncology/Hematology......Page 20 Cancer and Blood Disorders in Childhood......Page 34 II The Cancer Experience ‘‘On Treatment’’......Page 50 Stress and Coping in the Pediatric Cancer Experience......Page 52 Family Issues When a Child Is on Treatment for Cancer......Page 70 Psychosocial and Behavioral Issues in Stem Cell Transplantation......Page 92 Peer, Friendship Issues, and Emotional Well-Being......Page 117 Pain and Procedure Management......Page 136 Adherence to Treatment Demands......Page 155 Quality of Life in Childhood Cancer......Page 187 Spirituality and Complementary and Alternative Medicine......Page 206 A Goodness-of-Fit Ethic for Informed Consent to Pediatric Cancer Research......Page 222 Problem-Solving Skills Training for Mothers of Children With Newly Diagnosed Cancer......Page 235 III Cancer Late Effects ‘‘Off Treatment’’......Page 252 Psychological and Social Effects of Surviving Childhood Cancer......Page 254 Neuropsychological Late Effects......Page 279 Posttraumatic Stress and Posttraumatic Growth in Childhood Cancer Survivors and Their Parents......Page 296 Interventions for Cancer Late Effects and Survivorship......Page 314 Maximizing School, Academic, and Social Outcomes in Children and Adolescents With Cancer......Page 330 IV Palliative Care and End-of-Life Issues......Page 356 Palliative Care at the End of Life......Page 358 Loss and Grief......Page 375 V Prevention of Primary and Secondary Malignancies......Page 398 Genetic Issues......Page 400 Prevention and Cessation of Tobacco Use and Exposure to Environmental Tobacco Smoke......Page 417 Health Promotion and Primary Prevention of Cancer......Page 432 VI Sickle Cell Disease......Page 446 Biopsychosocial and Developmental Issues in Sickle Cell Disease......Page 448 Neuropsychological Aspects of Sickle Cell Disease......Page 466 Psychosocial Adaptation of Children and Adolescents With Sickle Cell Disease......Page 488 Family Systems Issues in Pediatric Sickle Cell Disease......Page 513 Pain Management of Sickle Cell Disease......Page 531 VII Training, Funding, and Collaborative Endeavors......Page 548 Training in Pediatric Psychosocial Hematology/Oncology......Page 550 Research Opportunities and Collaborative Multisite Studies in Psychosocial Hematology/Oncology......Page 564 VIII Prospective and Retrospective View of Pediatric Hematology/Oncology......Page 574 A Prospective and Retrospective View of Pediatric Hematology/Oncology......Page 576 Index......Page 592 Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes. Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on paediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field - the first of its kind in a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of state-of-the-art research and literature, with topics including: *Neuropsychological effects of chemotherapy and radiation therapy *Bone marrow transplant *Important issues about quality of life during and following treatment *Collaborative research among child-focused psychologists *Standards of psychological care for children and adolescents *Stress and coping in the paediatric cancer experience *The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service.; With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, paediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery and grieving process Represents multidisciplinary and international efforts and a combination of research and service. Containing information for patients and families, this volume will be useful to the psychologists, psychiatrists, oncologists, nurses, and social workers who help children and their families through the treatment, recovery and grieving process. This text represents multidisciplinary and international efforts and a combination of research and service. Containing information for patients and families, this volume will be useful to those helping children and their families through the treatment, recovery and grieving process