Citizens at the Centre : Deliberative Participation in Healthcare Decisions

Involving citizens in policy decision-making processes - deliberative democracy - has been a central goal of the Labour government since it came to power in 1997. But what happens when members of the public are drawn into unfamiliar debate, with unfamiliar others, in the unfamiliar world of policy making at national level? This book sets out to understand the contribution that citizens can realistically be expected to make. Drawing on the lessons from an ethnographic study of a public involvement initiative in the health service - the Citizens Council of NICE (National Institute for Clinical Excellence) - the book explores the practical realities behind the much-quoted faith in 'deliberation' that underpins so many models of public involvement and presents the analysis of sixty four hours of video and audiotape capturing a warts-and-all picture of deliberation in action. It sets deliberative participatory initiatives within a broad inter-disciplinary context and challenges politicians, policy-makers and academics to develop more realistic approaches to democratic innovation. Citizens at the centre will be of interest to academics and students in social policy, sociology, politics, health, social care, economics, and public administration and management. It will also be valuable to anyone involved in the policy making process, not only in the UK, but also in Europe, the USA and other countries where deliberative democracy is being implemented or discussed.|Involving citizens in policy decision-making processes - deliberative democracy - has been a central goal of the Labour government since it came to power in 1997. But what happens when members of the public are drawn into unfamiliar debate, with unfamiliar others, in the unfamiliar world of policy making at national level? This book sets out to understand the contribution that citizens can realistically be expected to make. Drawing on the lessons from an ethnographic study of a public involvement initiative in the health service - the Citizens Council of NICE (National Institute for Clinical Excellence) - the book explores the practical realities behind the much-quoted faith in 'deliberation' that underpins so many models of public involvement and presents the analysis of sixty four hours of video and audiotape capturing a warts-and-all picture of deliberation in action. It sets deliberative participatory initiatives within a broad inter-disciplinary context and challenges politicians, policy-makers and academics to develop more realistic approaches to democratic innovation. Citizens at the centre will be of interest to academics and students in social policy, sociology, politics, health, social care, economics, and public administration and management. It will also be valuable to anyone involved in the policy making process, not only in the UK, but also in Europe, the USA and other countries where deliberative democracy is being implemented or discussed.

Involving citizens in policy decision-making processes - deliberative democracy - has been a central goal of the Labour government since it came to power in 1997. But what happens when members of the public are drawn into unfamiliar debate, with unfamiliar others, in the unfamiliar world of policy making at national level? This book sets out to understand the contribution that citizens can realistically be expected to make. Drawing on the lessons from an ethnographic study of a public involvement initiative in the health service - the Citizens Council of NICE (National Institute for Clinical Excellence) - the book explores the practical realities behind the much-quoted faith in 'deliberation' that underpins so many models of public involvement and presents the analysis of sixty four hours of video and audiotape capturing a warts-and-all picture of deliberation in action.It sets deliberative participatory initiatives within a broad inter-disciplinary context and challenges politicians, policy-makers and academics to develop more realistic approaches to democratic innovation. Citizens at the centre will be of interest to academics and students in social policy, sociology, politics, health, social care, economics, and public administration and management. It will also be valuable to anyone involved in the policy making process, not only in the UK, but also in Europe, the USA and other countries where deliberative democracy is being implemented or discussed.

CITIZENS AT THE CENTRE Contents List of figures and boxes Acknowledgements A note on terminology Introduction Part I: Context The rise and rise of participation Deliberation Part II: A Citizens Council in action Setting up a Citizens Council Doing deliberation Better by design? Power, discursive styles and identities Reactions, reflections and reworkings Part III: Implications Reframing citizen deliberation New directions for policy and practice References APPENDIX 1 APPENDIX 2 APPENDIX 3 APPENDIX 4 APPENDIX 5 Index Recent trends and policy developments have called into question the divide between the provision of income support and social care services. This book addresses this theme with reference to key trends: individualisation, citizen responsibility, the decline of the married male breadwinner and new ways of supporting disabled and older people.