Atlas Epilepsy Care in the World 2005: Global Campaign Against Epilepsy

This atlas is one of the most comprehensive compilations of available resources for epilepsy ever attempted, providing an illustrative presentation of information on the current status of epilepsy services and care available from 160 countries covering 97.5% of the world population.The data confirm what professionals in the field of epilepsy have known for a long time - that epilepsy care is grossly inadequate compared with the needs in most countries. When it comes to epilepsy care, most countries are developing countries . Contents......Page 4 Acknowledgements......Page 6 Preface......Page 7 Executive summary......Page 8 Introduction......Page 11 Methodology......Page 12 Epilepsy: the disorder......Page 15 1. Milestones in the history of epilepsy......Page 16 2. Number of people with epilepsy......Page 20 3. Epidemiology......Page 22 4. Aetiology of epilepsy – reported frequency......Page 24 5. Aetiology and risk factors......Page 26 Epilepsy: the services......Page 29 6. Diagnostic services......Page 30 7. Primary care......Page 32 8. Provision of care......Page 34 9. Inpatient care......Page 36 10. Epilepsy specialist services......Page 38 11. Antiepileptic drugs......Page 40 12. The treatment gap......Page 42 13. Sub-specialized services......Page 44 14. Epilepsy surgery......Page 46 Epilepsy: the care providers......Page 49 15. Medical professionals......Page 50 16. Professionals allied to medicine......Page 52 17. Training in epileptology......Page 54 18. Education in epileptology......Page 56 19. Professional associations......Page 58 20. Lay associations......Page 60 21. Role of ILAE in fostering epilepsy care......Page 62 22. Role of IBE in providing epilepsy care......Page 64 Epilepsy: the public health aspects......Page 67 23. Budget and financing......Page 68 24. Disability benefits......Page 70 25. Epilepsy and rights......Page 72 26. Reporting and data collection......Page 74 27. Problems encountered......Page 76 28. Stigma and social issues......Page 78 29. The attributable and avertable burden of epilepsy......Page 80 30. Global Campaign Against Epilepsy......Page 82 O......Page 84 T......Page 85 References......Page 86 List of Respondents......Page 90 This atlas is one of the most comprehensive compilations of available resources for epilepsy ever attempted, providing an illustrative presentation of information on the current status of epilepsy services and care available from 160 countries covering 97.5% of the world population. The data confirm what professionals in the field of epilepsy have known for a long time, that epilepsy care is grossly inadequate compared with the needs in most countries:''when it comes to epilepsy care, most countries are developing countries''. This atlas is one of the most comprehensive compilations of available resources for epilepsy ever attempted, providing an illustrative presentation of information on the current status of epilepsy services and care available from 160 countries covering 97.5% of the world population. The data confirm what professionals in the field of epilepsy have known for a long time, that epilepsy care is grossly inadequate compared with the needs in most countries: ''when it comes to epilepsy care, most countries are developing countries'' At Head Of Title: Ibe, International League Against Epilepsy, Global Campaign Against Epilepsy. Includes Bibliographical References (p. 86-89). The word epilepsy derives from the Greek epilambanein, meaning to be seized, to be overwhelmed by surprise (1).