A birth that changed the nation : a new model of care and inclusion

Cover 1 Contents 10 List of Figures 12 List of Abbreviations 14 Foreword by Samiran Nundy 18 Foreword by Dr Farokh Udwadia 20 Preface 22 Acknowledgements 28 Executive Summary 32 The First Birth: Malini Chib 34 The Second Birth: The Spastics Society of India 37 Contextual Analyses: Cerebral Palsy 42 Domain I: Education 49 Domain II: Treatment and Rehabilitation Unit 68 Domain III: Child and Parents in Partnership 82 Domain IV: Training 92 Domain V: Capacity Building in the Community 99 Domain VI: Work Training Unit and the Skills Development Centre 108 Domain VII: (i) Expansion of Services on theNational Level: From Schools to Institution Building 113 (ii) Expansion of Services on the International Level 141 (iii) Economics and Sustainability 145 Domain VIII: Research and Transformation of Ideology: A Shift from Special Education to Inclusive Education 156 Domain IX: Policy and Macro-level Change: Legislation and Policy 193 Domain X: Results and Outcome andthe Way Forward 234 Annexure I 257 Annexure II 261 Bibliography 267 Index 272 About the Author 277 .microsite:hover{ color: #2a6496!important; border-color: #2a6496!important; } Visit the Book site for more information A novel model of care—integrating education, treatment and social and emotional development—that addresses the issues of people with disability This research examines a new holistic approach of care for persons with cerebral palsy and their families, developed by The Spastics Society of India (now ADAPT). The focus is on a new psycho-social model that combines education, treatment and socio-emotional development in social rather than in hospital settings, making inclusive education in regular schools possible. The author also narrates her experience as a mother, care-giver and professional, and the role of family support. Based on 40 years'work, the book provides an example of compassionate and effective care as well as its scalability. Using narratives of children, parents, doctors and other professionals, it shares the journey of pioneers who helped and trained others who eventually went on to create similar institutions all over India, empowering both parents and disabled but self-confident professionals. A novel model of careintegrating education, treatment and social and emotional developmentthat addresses the issues of people with disability This research examines a new holistic approach of care for persons with cerebral palsy and their families, developed by The Spastics Society of India (now ADAPT). The focus is on a new psycho-social model that combines education, treatment and socio-emotional development in social rather than in hospital settings, making inclusive education in regular schools possible. The author also narrates her experience as a mother, care-giver and professional, and the role of family support. Based on 40 years work, the book provides an example of compassionate and effective care as well as its scalability. Using narratives of children, parents, doctors and other professionals, it shares the journey of pioneers who helped and trained others who eventually went on to create similar institutions all over India, empowering both parents and disabled but self-condent professionals. Machine Generated Contents Note: 1. The First Birth: Malini Chib -- 2. The Second Birth: The Spastics Society Of India -- 3. Contextual Analyses: Cerebral Palsy -- Domain I Education -- Domain Ii Treatment And Rehabilitation Unit -- A. Parents In Partnerships -- B. Manpower Training: Therapists -- C. Aids And Appliances -- Domain Iii Child And Parents In Partnership -- Domain Iv Training -- Domain V Capacity Building In The Community -- Domain Vi Work Training Unit And The Skills Development Centre -- People Behind The Scenes -- Domain Vii (i) Expansion Of Services On The National Level: From Schools To Institution Building -- (ii). Expansion Of Services On The International Level -- A. International Collaborations. Mithu Alur. Includes Bibliographical References And Index. xxx, 245 pages, 28 unnumbered pages of plates : 25 cm